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That's good to know about the 5 year window. I was told something along those lines. That I could see improvements, anywhere from 1-3 years, or maybe even 5.
Early on when I was counting days, my head was still telling me that maybe I could have a drink one day again. And I would say well maybe this goes away and I can have one here or there. I would know it was a ridiculous thought and I didnt want to really act on it. But it was there. The good news is the more I lived with this pain, the more I started to see how alcohol was such a poison and to open that door again now seems crazy. Since I've changed my diet, the way that I look at food has also changed. I know it takes a long time but the fact that people develop neuropathy because of their diet leading them to diabetes is just frightening. I am on other forums and I read about peoples struggles and its crazy to me that we have gotten to this place where there is so much disease in our culture as a result of what people think is OK to put in their bodies. The only reason that I see this now is because I had to change because of what I'm dealing with. Otherwise, I would have continued to eat a ton of sugar, and most likely would have not made the strides I have with exercise. |
There was a great scene in The West Wing, where Leo, the (recovering alcoholic) Chief of Staff, when asked if he never wants a drink again, said: “I don’t want “a drink”, I want loads of them.”*
I knew this from the first day I got sober. I never entertained the thought, and I think I spared myself a lot of hassle that way. * I remembered it half right ;). The full quote: Quote:
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I thought I was dizzy and all that because of the gabapentin, but I was reading today on a FB support group that the disease itself can cause it.
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Over the years I have seen it reported several times in the PN forum that the face can be involved too - in fact, any part of the body. I have not heard about getting dizzy, but that doesn't mean nothing.
Most of the time it's legs/arms because they are the extremities, but PN can manifest all over the body - at least that's what I concluded from reading the PN forum for over 5 years. |
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It's interesting hearing how specific some neuro's get with patients. I see a Dr at The Peripheral Neuropathy Center at New York-Presbyterian hospital which is pretty well known and I really dont get much info at all when I see him. He basically tells me I did a number on myself, and not to drink, and offers meds. I have asked about diet and pain management and again he will write a reference.
Very little bedside manner at all. I took it upon myself to see a Dr with a small practice and he offered a lot more info. The jist of it has been that taking the alcohol out of the picture could result in improvement and I read that often. But it comes with a caveat that it could be permanent. So I choose not to get my hopes up and just be happy I can function the way i can. I also choose to live a lifestyle with diet and exercise. Figure it ups my chances of being able to stay on my feet as I age. I might give a plant based diet a go for 3 months to see if that helps, that's kind of the next thing on my radar. |
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Peripheral Neuropathy Doctors New York | Weill Cornell Neuropathy Center |
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