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02-02-2018, 08:28 AM | #1 | |||
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Sounds very promising to be honest!
Little things... yeah. Like the first time I could put on a sock standing upright without having to hold on to something. Sounds ridiculous at first sight, but it was a huge step for me. I gather this is something similar, right? Things that "normal healthy" people take for granted, but somehow for us is like "wow!". |
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02-02-2018, 03:06 PM | #2 | |||
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Grand Magnate
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That is excellent Icehouse .
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02-02-2018, 03:16 PM | #3 | |||
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Quote:
I can't wait to run again!!! I hate running, btw, but I just want to be able to do it! |
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02-08-2018, 11:53 AM | #4 | ||
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icehouse: how often do you do PT? i'm looking into it right now and can't shake the idea that 1 x a week doesn't do much, two would be better and three would be ideal ... but very expensive. what's your take?
meanwhile, i've moved to the east coast and am back on antibuse. have a neurologist appointment tomorrow where he's going to assess the damage i've done to myself by drinking and tell me that it's permanent. i already know i've damaged myself. i can't stand for more than five minutes without one leg or the other crumbling. and my balance is crap. and i've started using a cane. and i can no longer stand up paddle surf. and i still haven't gotten over that california girl that i had to dump. sheesh. ok. but ... onward! |
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02-08-2018, 03:40 PM | #5 | |||
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Grand Magnate
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Linter, I hope that the meeting with the neurologist is helpful .
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"Thanks for this!" says: | SecondChances (02-08-2018) |
02-08-2018, 03:43 PM | #6 | |||
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"Thanks for this!" says: | PamelaJune (02-09-2018), SecondChances (02-08-2018) |
02-08-2018, 09:21 PM | #7 | ||
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Linter, but having done therapy before, you can be given exercises to do at home and the follow up appointments are to monitor your progress and advance as needed. I believe that is what Icehouse is doing more or less. Once a week could well be more than adequate for an issue such as this. You were so lucky to get in to see a neurologist so soon. In the past I have had to wait several months to be seen. Best of luck with the appointment.
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"Thanks for this!" says: | PamelaJune (02-09-2018) |
02-09-2018, 06:13 AM | #8 | |||
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Yes, I have about 20m of exercises I do daily (mostly balance and coordination related) and my PT guy said I am already showing improvement.
My at-home exercises will become increasingly more difficult over the next few weeks\months as my balance improves. |
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"Thanks for this!" says: | PamelaJune (02-09-2018), SecondChances (02-10-2018) |
02-09-2018, 02:54 PM | #9 | |||
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Grand Magnate
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Icehouse, that graded approach sounds good to me.
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02-10-2018, 05:06 AM | #10 | |||
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He or she will be right in one way: there will be damage, and that damage will never heal. The word they forget to add: COMPLETELY. If this thread shows anything at all, it is that - although yes, there will also be some damage left that will not go away - you can do a lot of things to improve it massively. If I think back of the pain, fear, debilitation, humiliation I felt at the moment I heard that exact same message (he didn't even say it directly to me, but to a student/assistant standing next to him, as if I was an idiot who wouldn't understand anyway), and then where I am today, and what I was able to achieve, I'd want to go back to the guy and smack him in the face. (well, OK, just shout at him then, it's just a matter of speaking on how angry this makes me in hindsight ). One of the goals I set myself when I got involved in this non-profit addict support group is to convince the neurologists that they need to adapt their message. People simply get crushed by it. If they are still drinking, they will go "what's the point of even getting sober if I'm always going to feel this pain or can't even walk?" And if they are sober, they might wonder if just starting again to forget the debilitating pain isn't a better option. Think about it: it's the worst possible way to say to someone they have an illness that can be *managed* - provided that the patient stays off the drink. There are no miracles, they say. Unless you'd want to call the story of Icehouse one (I'm using him because it speaks most to us: from wheelchair to worrying about having a better balance while hiking or running again). My case isn't all that different: from a debilitating pain and hardly managing to walk 10 meters a day (office to bed to office to bed... and thinking about getting a wheelchair...) to rebuilding a big part of our house, starting a veggie garden, managing the upkeep of the whole house. From being unable to drive at all because I couldn't feel the pedals through my pain, to comfortably drive a group of 3 people to Paris & back in one day (730km). (I even got a speeding ticket darn it! 143 where 130 was allowed. €45, so it wasn't that bad, but in a way I'm proud of that ticket! ) So... don't let that sentence drag you down. Concentrate on staying sober, be patient, and start doing what many of us did: look at your food, vitamins, PT, optionally medication, and improve step by step. Not everyone will "heal" at the same pace, or even with the same results, but improve you will. Remember that when you hear the "verdict". |
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"Thanks for this!" says: | ger715 (02-13-2018), Icehouse (02-11-2018), kiwi33 (02-10-2018), PamelaJune (02-10-2018), SecondChances (02-10-2018) |
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