No, in my case the diagnose was done with a nerve conduction velocity test - they send electrical signals through your nerves and measure the delay.


There are many types of neuropathy, and your symptoms sound very different from mine, so I'm not really sure what to recommend beyond the standard vitamin and nutrition tips. Hopefully someone else will chime in.

Did the nerve conduction pick up large fiber neuropathy in your case? My NCS & EMG were clean, the skin biopsy found small fiber damage.

Yes, it did. In both legs it started about 10 cm below the knee right down to my toes. The doc was like "uh oh, almost no connection at all there sir". I know from reading here that in a way I was "lucky", as it's not as clear with most people - and with some even the skin biopsy doesn't show anything, and yet they do have all the symptoms of PN.


Yet I'm able to walk without anyone noticing. Don't ask me how that works, it beats me.

That is still my biggest gripe. I still walk with a bit of a gait (I walk on my heels). Even after all that dabbling in PT, balance exercises, etc....

I can imagine how that is not fun at all to live with. You probably - from previous conversations - have less pain than I have, but I can at least "hide" the whole thing to outsiders. (except when I have break-through pain, then I walk like a 104 year old...)



Did you completely stop the balance exercises?

Nope, I do them when I get bored or when I can't ride the bike.

2618 days sober.

Not much to report...carry on. Next month will be a good one though.

Glad to hear you are doing better these days. Did you ever have pain or symptoms outside of your legs/feet? Sounds like for the most part your feet pain has decreased?

Some days I have some slight numbness in my fingers, like they are sleeping a little bit. Not enough to really bother with playing the piano or guitar, but it's there. I think I just stopped drinking before I ruined my hands as well. (Eric Clapton did damage his hands through drinking BTW)



As for my feet, all the pain is now in the outer half of my feet - say the ball of my feet + the toes. The big toes are the most painful. When I started out, it was from the ankles downwards, so there has been some significant progress/healing.