Freeway...have you tried the Weill Cornell PN center in NYC? I have an appointment with them in late October. It appears as if the docs there only specialize in PN
Peripheral Neuropathy Doctors New York | Weill Cornell Neuropathy Center

The bedside manners of neuros is... something that could fill books. But "hey, it's your own fault, stop drinking and enjoy a life of pain, it's outta my hands" pretty much covers it.


Alternatively they might want to sell you a very expensive treatment that may or may not work.


Sorry, not meant as saying there are no good ones, and we owe it to ourselves to keep looking for possible treatments etc. But it struck a nerve* because I have been there, and remember how utterly lonely & devastated I felt after my original diagnosis.


That small practice doctor is pretty much right though OAF, and I think it's very similar to what we've been saying here, no? It's a difficult message, because YES it helps a lot when you quit - it's absolutely vital - but NO we can not guarantee it will all go away. But we can manage it, at least it will not get worse (99.9% of the time), and you will notice tiny improvements.


There is a lot of work being done in the area of neuro-stimulation to block the pain. They are not there yet, it's not perfected yet, but there are some promising signs. So who knows where we are in 5 or 10 years.


Edit: that pun was absolutely unintended, but made me laugh when I re-read my post.

2983 days sober.

Just got back from 10 days in Newfoundland where my balance was tested with the blowing rain, crazy winds and rocky terrain. No injuries!

Carry on with your conversation.

Funny, my wife told me yesterday the weather was a bit funky in that area! (her colleague was there and was all but washed away).

Anyway, I see you are close to 3000, so I feel I’m losing terrain again.

Just kidding, congrats!

Wide-O, you can do it!!

Oi! You passed 3000 without a beep.

That is simply not done! You get 500 days deducted!

Seriously though, great stuff man. I totally by accident (I swear, what are the odds?) saw a certain before/after pic today, bloody hell...
CONGRATS ICEHOUSE!!!

HI CTman. Yes, that is the spot. Weill Cornell is part of NY Presbyterian. It's a nice facility, but my experience with my Dr is that they diagnose you and prescribed meds and that's basically it. The last time I went was for a follow up EMG test. The result said that I improved in one area, but regressed in another. The suggestion was to keep doing what I was doing and come back in a year for a follow up.

Outside of lifestyle changes which include incorporating vitamins, I don't think there is much more we can do. I'm going to keep on pushing on.

I just don't fully understand how it progresses if you eliminate what is causing it. It makes no sense to me. What you guys have said (stop/drastically reduce intake coupled with healthier lifestyle) makes a ton of logical sense to me.

I had an appointment with a neuro, their initial read was it isn't alcohol related neuropathy because it is more in my calf area than in my fingers/ hands and toes/feet. They did blood tests and physical exam (reflexes, etc) and said all is fine.

I have an EMG scheduled for Oct 24th. What should I expext3, is this super painful, or just uncomfortable?

I did not think the EMG was that bad...not painful, just uncomfortable.

Thanks Ctman, much appreciated.