Thanks Wide-O, super helpful. Will definitely take your advice.

Think you are right on the neuro guessing a bit, I pushed him pretty hard on everything. After the EMG was normal, pushed him on the SFN and skin biopsy. In his opinion, because this didn't really start and worsen in my feet/toes, the labs were fine, EMG was fine and the physical exam was fine, he felt like there isn't much more to do.

He just told me to come back in 6 months to a year if things don't get better or get worse! In the meantime I may see if my regular doctor can test me for any vitamin deficiencies (other than B12) and/or alergies.

Blood panels are always useful. I don't know where you live, so it may be easy for me to say, and expensive/cumbersome for you.


When I was in a bad shape and searching for answers, I had regular blood panels done, to also see trends, to see what supplements actually worked etc. But for me, if I call today, it will be done tomorrow morning and would have the results Tuesday for €2.00 Your mileage may vary.


I put the important ones in a spreadsheet to see over a full year what worked and what didn't. That way I ended up just taking D3, magnesium, and B12 - which is what my GP completely agreed with too, plus watching my diet. Not like a maniac, I still had my fries or whatever once a week, but my "bad cholesterol" was reduced to 1/3rd in 8 months (she had to look twice, but yep...). While eating quite a bit of healthy fats still (olive oil etc), but just going easy on the carbohydrates (and fast sugars, d'oh).



So still lots to try without stressing out too much. I spent 10 hours on my feet working on my car yesterday, using heavy machinery etc. No pain today (yeah, my back LOL). Age 57, so no longer a pup... So we learn to manage it, good days and some bad ones.