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Old 01-15-2021, 10:54 AM #1
Jane85 Jane85 is offline
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Thanks for that post On a freeway and thanks to all who have created and keep this page going for so long. It is so helpful. I know it’s a long road to recovery but I am curious with your personal experiences, did the progression of the disease stop once you stopped drinking? And if so, about how long did it take for that to happen? Thanks for any feedback.
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Atticus (01-17-2021)
Old 01-16-2021, 04:06 PM #2
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Yes , 9 months after stopped dinking all sensations started sides the 3 prior symptoms of weight loss stomach pains& burning in armpit seven docs said that is weird. Smh
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Old 01-17-2021, 01:35 PM #3
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Mr. t, I am sorry for what you are having to endure. I am surprised they didn’t see anything with the endo given the severe stomach pain. Good news that some of the symptoms have subsided. There is always hope. So many people have achieved good results through diet. Keep searching. I belong to a Facebook group (peripheral neuropathy success stories!) lots of great information there for diet, pain relief and research going on for this dreadful disease. Wish you all the best. Keep us posted.
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Old 01-17-2021, 04:06 PM #4
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Quote:
Originally Posted by Jane85 View Post
Thanks for that post On a freeway and thanks to all who have created and keep this page going for so long. It is so helpful. I know it’s a long road to recovery but I am curious with your personal experiences, did the progression of the disease stop once you stopped drinking? And if so, about how long did it take for that to happen? Thanks for any feedback.

Hi Jane,

Hope you are well. Have often thought about your progression from diet thread.
I asked the same question further back in this thread and was told in takes about a year. For me it was quicker but I had to start again because I mistakenly thought an odd drink wouldn't hurt me. My symptoms started in January 2020 with numb toes and thats pretty much all that remains for me.
How are your symptoms? Are you making progress? Have you plateaued? Any top tips from your Facebook group? I'll text in diet thread soon.

Atty
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Old 01-18-2021, 10:56 AM #5
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Hi Atty,
I am so happy for you and your success. I’m sure you know just how fortunate your are. It’s been over a year and a 1/2 since my last glass of wine. I am not 100% sure my pn is due to alcohol but I would definitely bet the ranch on it. I seemed to have plateaued 6 months ago or so but recently it changed (progressed). The whole food diet is great for overall health but not sure if it has helped with pn. I am thinking I will start a keto vegetarian type diet. It seems like a lot of folks with pn are having success with that. I wonder if the cause is alcohol, does that change the response to diet as opposed to the cause being diabetes or something else. Anyways, the Facebook group is great, you should join. Lots of great information with a positive attitude. They have guest speakers via zoom that can be very interesting. Recently one from a company with a product in the process of testing and approval for nerve regeneration (will find the info and send you the link). Also (because your toes are numb) a toe separator can help increase circulation (will send that link too). Take care
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Old 01-18-2021, 12:13 PM #6
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Facebook Here is the address for the zoom meeting (not sure you will able to access). The company is WinSanTor, CEO Stanley Kim. I can’t find the link that was posted for the toe separator but the company is natural footwear.com. There are before and after infrared pics of feet using the product. The product is stupid expensive but you can get something very similar on Amazon for cheap. Take care Atty
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Old 02-02-2021, 08:48 AM #7
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3472 days sober...

We have snow, sun, rain, sun , snow....all in one day. Welcome to the weather in the South!

Hope all is well and everyone is staying sober!

Ice
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Old 03-02-2021, 08:34 AM #8
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3500 days sober

What a nice round number!
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Old 03-02-2021, 09:00 PM #9
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Well done Icehouse.
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