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New study on IVIG and small fiber neuropathy

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Old 12-20-2017, 10:41 PM #1
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LizaJane LizaJane is offline
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Do you feel brain fogged? Maybe you could get them to do a PET or SPECT, and if it's abnormal, they'd count that as cns involvement?
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--- LYME neuropathy diagnosed in 2009; considered "idiopathic" neuropathy 1996 - 2009
---s/p laminectomy and fusion L3/4/5 Feb 2006 for a synovial spinal cyst
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Old 12-21-2017, 03:09 AM #2
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Originally Posted by LizaJane View Post
Do you feel brain fogged? Maybe you could get them to do a PET or SPECT, and if it's abnormal, they'd count that as cns involvement?
Thanks. I’ve had several brain MRIs show white matter but they say it’s existing damage not ongoing inflammation. A lumbar puncture showed paired o bands but this is too non specific. I’ve also had full body CT show nothing untoward apart from lumbar degeneration. I will ask about further scans but they are reviewing my case just now so we will see.
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Sjögren’s, Hashimoto’s and Systemic Sclerosis with Raynaud’s, Erythromelagia and small fibre polyneuropathy, GI problems top to tail, degenerative disc disease and possible additional autoimmune diseases
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