advertisement
Reply
 
Thread Tools Display Modes
Old 12-28-2017, 02:27 PM #1
MareQ MareQ is offline
New Member
 
Join Date: Nov 2015
Posts: 5
8 yr Member
MareQ MareQ is offline
New Member
 
Join Date: Nov 2015
Posts: 5
8 yr Member
Default New here with CIPN - Rebuilder works?

I posted awhile back when I thought I had neuropathy per my Dr but I was actually anemic... Now unfortunately I definitely have CIPN.

I was diagnosed with breast cancer in Feb. Did 4 rounds of chemo including taxotere and had horrible toenail pain, numbness, pins and needles in my feet and some pins and needles in my hands. I was told symptoms would more than likely reverse themselves within 6 months of the end of Chemo. It's 7 months this week...


I am "OK" if I spend most of the day off my feet with my feet elevated @@ Christmas Day I hosted and when the last person was gone I burst into tears. My feet felt like they were literally on fire. The pain was so intense. My husband gets very frustrated because he doesn't know what to do other than feed me advil.

On top of that I have muscle pain and joint pain from the hormone therapy I am on. To try an ease that I have to make sure I don't sit still too long, I have to get up and move then I have the feet issues. I am in an endless loop of pain.

I walk like a waddling penguin. Even if I am having a good day I just can't seem to walk normal anymore, I walk on my heels.

My oncologist (CTCA in Zion IL) gave me Topricin cream which I think might work? I'm honestly not sure if it eases the pain or if I am imagining it and recommended the Rebuilder. I don't want to spend that much money on the rebuilder though without some concrete evidence that it works. There's also some systems that appear similiar on Amazon for much less.

I'd love to hear what other people have tried that may have helped.

Thanks!
MareQ is offline   Reply With QuoteReply With Quote

advertisement
Old 06-16-2021, 10:59 PM #2
pkw2100 pkw2100 is offline
Newly Joined
 
Join Date: Jun 2021
Posts: 6
2 yr Member
pkw2100 pkw2100 is offline
Newly Joined
 
Join Date: Jun 2021
Posts: 6
2 yr Member
Default

I used the Rebuilder for 3 months, precisely following directions. It didn't help me. However, the company honored their money-back guarantee and allowed me to return it. There was a restocking fee so the refund wasn't in full, but I did get back most of the cost. The customer service was excellent and I stayed in touch with the on a regular basis, asking for advice. I think it does work for some people so it might be worth a try.
pkw2100 is offline   Reply With QuoteReply With Quote
Old 06-23-2021, 02:38 PM #3
Marlene Marlene is offline
Member
 
Join Date: Apr 2007
Posts: 498
15 yr Member
Marlene Marlene is offline
Member
 
Join Date: Apr 2007
Posts: 498
15 yr Member
Default

My husband's PN was a result of chemo and nutritional issues. He found the Rebuilder to be very helpful for his PN. He did this in conjunction with nutritional support and finally, reflexology. None of this was done all at once. This took a few years. Like most, you try something and it either helps or not. And you keep looking and trying things.

He first did B12, B complex and minerals. Though needed, did not have an effect on the PN. He added in Alpha Lipoic Acid which knocked back his pain level from and 8 to 5. The addition of the Rebuilder to his pain level down to 2, and sometimes a 1. It has never resolved 100% but going from a 9-10 on the pain scale to almost nothing is significant. He also takes a mitochondrial supplement that's helpful in general. The reflexology helps with flexibly and congestion.
Marlene is offline   Reply With QuoteReply With Quote
Old 06-23-2021, 03:23 PM #4
caroline2 caroline2 is offline
N/A
 
Join Date: May 2015
Location: Santa Monica, CA
Posts: 3,313
8 yr Member
caroline2 caroline2 is offline
N/A
 
Join Date: May 2015
Location: Santa Monica, CA
Posts: 3,313
8 yr Member
Default

I'm not clear what a Rebuilder is. I just did some checking and what I do for the circulation in my feet is and I've learned this work from PTs and do it at home every day.

Sit on chair or side of bed, do a marching in place exercise, Do it mild or give it some power. I do 15 times on each food and do 3 sets. The other one that does good is heel/toe flexes and again 15 times on each foot and 3 sets. I do
these every morning after a good night's sleep and all the blood is waiting to be awakened. Maybe this is what the rebuilder does. I know a bout a Rebounder but not a Rebuilder.
caroline2 is offline   Reply With QuoteReply With Quote
Reply

Tags
day, feet, pain, rebuilder, walk

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
CIPN worse at night? Funnyfingers Peripheral Neuropathy 7 04-14-2017 07:52 AM
Cipn Imdianeg Peripheral Neuropathy 2 04-01-2015 10:14 AM
CIPN - Disability Possible? HalcyonDays Social Security Disability 13 05-13-2012 05:59 PM
Newbie...CIPN benzgirl Peripheral Neuropathy 4 04-25-2012 11:24 AM
Complicated CIPN javamom Peripheral Neuropathy 11 12-14-2009 10:46 AM


All times are GMT -5. The time now is 05:26 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.