advertisement
 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 02-22-2018, 11:23 AM #4
dtaijo174 dtaijo174 is offline
Junior Member
 
Join Date: Aug 2017
Posts: 9
5 yr Member
dtaijo174 dtaijo174 is offline
Junior Member
 
Join Date: Aug 2017
Posts: 9
5 yr Member
Default

Quote:
Originally Posted by Shak2388 View Post
Hi thanks for the reply...i have just read your story,and your journey is sounding similar to mine,but I don't understand why the Neuro would dismiss small.fibre neuropathy?I choose him on purpose as he specialises in SFN..he listensed to my symptoms and i also did tell him I've been researching on the net and my symptoms do consist but he said NO I will be fine fine,when will I? I'm still.in pain,getting a biopsy on private is 2 much money..so it looks like I will be waiting for months until the hospital sees me!!I still can't believe why this thing has happened,wife is giving birth in the summer and honestly hope I'm not in pain or get worse..i need to find out what he diagnosed me with which I will put up on here for opinions
I feel your pain. The second neurologist i saw is a SFN specialist and he dismissed my symptoms as well. I trusted him until my toe went numb. Push for the skin biopsy and I pray it comes back negative.

Side note, I also understand your concern about your wife and future child. I have 2 children (1 & 3 years old). My daughter was planned when my doctor told me it was BFS and nothing to worry about... Now with my SFN diagnosis, I worry about how i will take care of them if this progresses. My wife does not make enough to sustain our family. This bothers me more than the disease...

With that said, it might be a good idea to get/increase your disability insurance prior to a skin biopsy. This way you lock in your rates at a low amount, instead of paying a premium or getting rejected post diagnosis.
dtaijo174 is offline   Reply With QuoteReply With Quote
 

Tags
feeling, iâ’m, sharp, started, symptoms


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
25 year old male. very scared. Mustang0227 Peripheral Neuropathy 169 01-19-2014 02:34 PM
56 year old male markack Social Security Disability 12 05-16-2011 10:33 AM
PN in healthy 19 year old male symptoms help mikerobinson41 Peripheral Neuropathy 12 05-28-2010 03:41 PM
9 Year old Male MRI Results, Please help if you can Dad_of_3 Children's Health 3 07-25-2009 10:06 AM
Shunt Revsion in 36 Year Old Male theweave Hydrocephalus 15 05-04-2009 11:06 PM


All times are GMT -5. The time now is 01:57 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.