Can anyone tell me which center is known as being the best for treating PN?

I am of the cynical viewpoint; they are all at least equally terrible. Some are probably worse than others.

You might have luck if the underlying cause of your PN is known, like B12 deficiency or diabetes, then you change your diet and it gets better. Otherwise they give you drugs like; amitriptyline, lyrica, gabapentin, cymbalta, which don't usually work, although they can be helpful for sleep problems. You might have some luck with them or supplements or who knows...!

--you want a specialty facility.

These include:

The Cornell Weill Center for Peripheral Neuropathy (New York)
Massachusetts General Hospital neurology (Boston)
The Jack Miller Center (Chicago)
Washington University Medical Center, Neuromuscular Division (St. Louis)
The University of San Francisco Medical Center (San Francisco)
Johns Hopkins Medical Center (Baltimore)

There are probably others that would provide comprehensive testing and treatment approaches; these are the ones that have been research hotbeds into the condition over the years.

Thank you for posting this, Glenntaj. As always, very helpful information.

Do you any over the others? My neurologist has always recommended Mayo. Do you have views on that? It's really not a specialty facility, if I'm not mistaken, but his thinking was that they could run all sorts of advanced tests. But presumably so can the places you list here by just sending them off elsewhere, if they can't do it in-house.

Have others had experience at any of these places, especially positive ones?

I'm considering visiting a center this summer, since my condition is getting worse and worse each day.

I think Mayo could also run a lot of advanced tests. I dig into the PN research from time to time and a well-respected researcher, P James Dyck, is there. There are a number of doctors there that list only PN as their interest, not the long menu of other neurological conditions. The big strength of the Mayo Clinic is the collaboration between doctors that's ingrained in their culture.

That being said, having followed this board for a long time, I've seen people post negative experiences about the Arizona clinic, mixed reviews at the Florida one. I've been inclined to check out Rochester, where Dyck is based.

I dug up one thread where this was discussed.

Visiting a Medical Center (Mayo, JHU, etc.)

just got back from the mayo in rochester where i was diagnosed with mild sensimotor polyneurapthy and small fiber neuropathy. they were quite amazing at coordinating everything. highly recommend it.
mikael

Hi there,
Thanks for reporting back. Can you say a bit more about your experience. In particular, I'm interested in whether they were able to determine the cause of your neuropathy? I've already been diagnosed with neuropathy, so I would only be going in hopes of them determining the etiology of my illness.