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03-28-2018, 04:21 PM | #1 | ||
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Have you been diagnosed with SFN? Punch biopsy maybe? Have you found anything that helps, other than narcotics? |
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03-28-2018, 06:23 PM | #2 | |||
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Member
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I have profound Peripheral Neuropathy, which was diagnosed with EMG nerve conduction testing, in 2010 and 2013, and I have several other neuropathic conditions, so I think just based on what I was experiencing was enough for the diagnosis. I take 3600 mg of gabapentin every day, and most of the SFN is controlled. I still have numbness, tingling, and a sensation sunburn in my lower face, lips and tongue. I wear braces on my lower legs, and walk with a walker (this is PROFOUND Peripheral Neuropathy) and when I take off my braces and get into bed, the bottom of my feet buzz, tingle and hurt like when you hit your 'crazy bone'. That lasts for about 3 minutes, and then it is gone. I had to buy new sheets, because I had very high count Egyptian Cotton sheets, but they weren't really smooth, and my face was irritated by the pillow cases. So I bought lower thread count Pima Cotton, Sateen finish) and they feel cool and soothing. I just realized that I should have just gotten new pillow cases! Oh well Best of luck and finding solutions to your problems with SFN. Regards, ElaineD |
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03-29-2018, 08:26 AM | #3 | |||
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I have a dx for SFN but didn’t have a punch biopsy. My pain management doctor talked me out of it as he felt it would become another place I’d have pain after. For example when I had frozen shoulder for a year after my shoulder burned and it never had before. I take Kratom for the burning and for me it’s been very good. I was able to get me off the narcotics with it. At night I use aspercreme with lidocaine or Salinas Lipocaine plus. I recently found something that works even better and to me makes no sense: Benadryl itch stopping Gel. I don’t itch and I don’t have poison ivy but it allows me to use covers and even makes me sleepy. Go figure! Btw I am in Florida too.
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