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04-29-2018, 04:47 PM | #5 | ||
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I’ve just seen my vascular doctor at connective tissue disease clinic and he is retesting my brain and cervical spine for progress of small vessel disease/ white matter/ cerebral vasculitis. Although this wouldn’t explain my main peripheral symptoms it could explain my issues with standing, mildly ataxic gait and disorientation in certain environments. And I think he feels that the other stuff might be some sort of small vessel vasculitis too. Like you I have lost faith in my neuro - particularly since she described my pursuit of answers to explain my debilitating symptoms as “heightened heath awareness” - lol. I wrote her a very assertive letter calling each nonsensical point she made and I’m awaiting some sort of response. Meanwhile my GP has referred me back to neurology for a second opinion. But as my reflexes are “brisk” I don’t expect much to come of this or of the next neuro, my third to date. But the vascular doctor is very thorough and knowledgeable at least.
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If you get lemons, make lemonade Sjögren’s, Hashimoto’s and Systemic Sclerosis with Raynaud’s, Erythromelagia and small fibre polyneuropathy, GI problems top to tail, degenerative disc disease and possible additional autoimmune diseases |
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"Thanks for this!" says: | echoes long ago (04-29-2018) |
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