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Old 06-20-2018, 03:43 PM #7
Ragtop262 Ragtop262 is offline
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Join Date: Mar 2015
Location: Midwest
Posts: 381
10 yr Member
Ragtop262 Ragtop262 is offline
Member
 
Join Date: Mar 2015
Location: Midwest
Posts: 381
10 yr Member
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Hi Burnsie:
I have similar symptoms. I've always had various little twitches, but 4 years ago I started getting some tightness in my legs, which turned into twitching, then cramping, then pain and tingling in my feet. After the obligatory google search, I was sure I had some horrific disease - but testing failed to show anything serious. Most of the twitching and cramping has receded, and I'm mainly just left with low level pain and numbness in my feet. Life goes on, but a little different than before. I take a low dose of Gabapentin to moderate the symptoms a bit, and some supplements which also seem to help a bit.

But, I have always been intrigued by the overlap between SFN, BFS, and Fibromyalgia - the common denominator being damage to small fiber nerves. (Lots of people with BFS and Fibromyalgia show small fiber damage on biopsy - and lots of people with SFN have twitching, cramping and pain that can also be symptomatic of BFS and/or Fibromyalgia)

If you do a search, you can find a few old posts where I have brought up this issue.

Unfortunately, none of this information seems to bring us any closer to an effective treatment, so.............
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