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07-21-2018, 01:09 PM | #1 | ||
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Junior Member
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Hi All,
Background: I first noticed tingling & pins & needles in my feet and dull aches/cramps in my calves back in April and was referred to a neurologist. I was given a physical exam, EMG, NCS and full spine MRI which all came back negative. The Neurologist did not believe anything was wrong with me and told me to give it time. I had been a daily drinker over a decade and decided to quit in April when I first had these symptoms around the same time I saw the Neuro. After 2 weeks they completely disappeared. I continued my alcohol abstinence for 3 more weeks and then went on a 4 day bender. 3 days after my last drink in May the symptoms returned and have persisted every day since and gotten worse. I now have tingling in both feet, cramps, aches and general soreness in both ankles, calves, thighs, & hamstrings. I also have plantar fasciitis type pain in the bottoms of my feet when I wake up and later in the evening. Exercise is becoming more difficult and causing fatigue and pain. Follow up: I have since seen 2 Neurologists a chiropractor, pain management specialist and rheumatologist and no one has been able to diagnose me with anything. I believe I have SFN, but neither Neuro believes I do and they are not in favor of a skin biopsy. I have had dozens of blood tests and nothing out of the ordinary outside of low/normal B12 (which I supplement in a high dose and is back around 1000), low Vitamin D, fasting glucose of 92 and low WBC. Questions:
Thanks All!! |
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07-21-2018, 06:43 PM | #2 | |||
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Grand Magnate
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Hi MCEC5
Welcome to NeuroTalk . The causes of PN can be hard to diagnose; often it is idiopathic, which means that it has no known cause(s). Your alcohol intake may well be significant. I have mild/moderate PN in my hands which very likely is a consequence of when I abused alcohol. I stopped drinking about 10 years ago and it is now stable/decreasing. In this context this thread is worth checking out https://www.neurotalk.org/alcoholism...pathy-2-a.html . Members who are dealing with alcohol-induced PN use it to support and encourage each other. All the best.
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Knowledge is power. |
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07-21-2018, 10:08 PM | #3 | |||
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Member
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@MCEC5, Sounds like you have great medical coverage to have all the tests done that you mentioned.
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I would say yes, insist on a skin(or nerve) biopsy, and further blood labs, if possible. For me the diagnosis was "idiopathic", case closed. I tried pumping up with B-12, labs showed that to be successful, but no appreciable change in my condition. Best of luck.
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3/1/2011- diagnosed with Peripheral Neuropathy April 2012- Treated for Hepatitis C, achieved SVR |
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07-23-2018, 12:20 PM | #4 | ||
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Junior Member
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How much and what were you drinking every day? I'm not convinced that alcohol is responsible for PN unless it's abused.
Try backing completely off of salt and sugar for a few weeks and see if that has any effect. |
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07-23-2018, 01:10 PM | #5 | ||
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Junior Member
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Quote:
Thanks |
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07-23-2018, 04:00 PM | #6 | ||
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Junior Member
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I found that salt....too much salt triggers my PN and my right foot will feel like a club for a day or three. This happened after eating boiled crawfish at the Breaux Bridge crawfish festival a couple of years ago(I ate a LOT). I also like Margaritas, and after a camping weekend where I drank quite a few, the same old club foot showed up. That mix is way way too sweet. I have not climbed up on the wagon yet, but am going to do so this winter to see if I have any change in symptoms. Right now, it's ball and big toe on both feet numb(feels like a sock wadded up under the ball of foot in boot), twitchy muscles, a occasional 'flushing' feeling up and down the legs. My intake used to be 2-6 beers a evening or equivalent mixed drinks, but I have backed off a little bit in the last couple of months after my PN flared up for an unknown reason. I am trying to keep it to 2-4. IPA's seem to aggravate it, but Dark beer like Guinness or Yee Haw Dunkle do not. I kinda wonder what the GMO role in all of this plays.....no GMO in the dark Beers as far as I know but lots in the US nationwide domestic beers. |
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