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07-30-2018, 10:26 AM | #7 | ||
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Then the neurologist will probably see me herself (I think I’ve got another woman neuro - hopefully less sarcastic and more up to scratch on Sjögren’s SFN) in a few more months with results of tests. The ever growing cynic in me says that this is just the NHS hospital buying time so that they can say it’s all damage done and no point in treating my SFN as it’s gone as far as it’s likely to - bearing in mind that I’m fairly numb everywhere now. It also occurs to me that, if nothing shows up again with skin biopsies, then it’s likely that they will discharge me with Functional Neurological Disorder or Fibromyalgia secondary to my SS - which is a daunting prospect I admit. X
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If you get lemons, make lemonade Sjögren’s, Hashimoto’s and Systemic Sclerosis with Raynaud’s, Erythromelagia and small fibre polyneuropathy, GI problems top to tail, degenerative disc disease and possible additional autoimmune diseases |
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