Hi again David. Yes it’s incredibly expensive to buy it here in the most pure form. But we have just been away on short holiday in Dublin.

My husband got fed up of me being in so much pain and hobbling, losing my balance, severe fatigue etc so dragged me into a Hemp shop on the high street (the hemp co, Dublin) and we bought a vape pen and 99% pure crystal CBD powder for me to try once I’m off Pregabalin/ Lyrica soon.

It wasn’t at all cheap to buy but if it works we will source the crystal competitively online.

Needless to say my oldest son is exasperated with me as he says it’s the THC that counts and mine has none. But I always threw up after smoking joints when younger and I’m so hypersensitive to medications that I just want the isolate first.

So I’m excited, having learnt more from young man who went through the various options with us, even though we told him honestly that we were only researching possible options - not planning to buy anything.


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Hello again,

Yes, it is, but I know of at least one company that ships to the UK and it costs between $15-20 for a gram of CBD isolate powder/crystalline, which is what you purchased. That's very cheap and affordable. I use 3-4 grams a month at most, so that's very affordable even on my limited income. I'll say it again, UK prices are absolutely ridiculous.

I hope what you bought works for you. Remember that you will want to see third party testing since CBD isolate is processing with chemicals. A clean product will have washed it all out and will have testing showing as much. But I'm happy to hear that you found someone that was helpful. It can be confusing at first, but it's really simple once you get into it. I was the same way and now it all makes sense and is easy to navigate.

Your son has a point, but he is exaggerating it. Studies show that THC and other cannabinoids can be beneficial on their own and in conjunction with one another, resulting in what is called the entourage effect. So a few preliminary studies show that a full spectrum CBD oil is best, this will be 85-90% CBD and then it will have trace amounts of other cannabinoids and terpenes. However, CBD isolate is immensely effective and has been shown to have far more extensive health benefits with minimal, if any, side effects than any other cannabinoid including THC. But THC has health benefits, and again especially in conjunction with other cannabinoids. In particular, THC has been shown to have excellent analgesic properties. There are also studies on dementia that are promising. But THC is also psychoactive and so can have additional side effects. I would say try what works for you, and if that's pure CBD isolate, then you'll be just fine, since CBD is by far the most medicinal of all the phytochemicals in cannabis.

I do want to point out that CBD can also interact with medications. Studies are limited, but it seems like it can interfere with medications processing through the liver. It apparently acts like grapefruit. You can find all this information in the links I provided in my original post.

Hi again David - thanks so much for taking trouble to research and sorry for late reply. I fell in the bathroom and fractured my rib a week ago on the edge of the toilet bowl. I have a haematology the size of two golf balls and a dark red (changing daily bruise the size of a large sunflower on the left side. They X-rayed to check no long or spleen damage and could see the fracture but no displacement or splintering thankfully!

The pain has been unreal and it’s very hard to get comfortable in bed. I’m not good with pain meds and nearly started using my CBD with vape but bottled out as by this time I’d agreed to take high dose Valium and a pain killer called Nefopam. Both zone me out and maybe I should have tried CBD first but I felt that I was struggling to breathe fully already due to pain so the thought of inhaling anything was more than I could contemplate.

My middle son (23) is home to look after me and the dogs for 24 hours while husband is at work. So he’s researching this as he smoked pot sometimes and it makes him anxious but he also suffers tremors during the night. He thinks it’s due to anxiety and I think it’s partly because his body has never been able to cope with too much stimulants eg sugar and alcohol. He has always has reflux for example so I think blood sugar levels/ hypoglycaemia comes into it too.

Anyway he first sent me a link for medical cannabis and it’s very positive impact on Parkinson’s a year or so ago so he’s helping me work it all out for when I get off the Valium and Nefopam plus Lidocaine pain patches.

I’m going to post about my new young neurologist and her views on my tremors, autonomic dysfunction and SFN in case you’re interested.
Mat


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Hi Mat,

I'm so sorry to hear about your fall. I hope you make a quick recovery everything considered. But it seems like it could have been even worse and you escaped without anything terrible happening. Some of those possible outcomes sounds terrible.

THC is not good for anxiety, whereas CBD is. The best relief is often gained by using CBD isolate or a full spectrum product with as little THC as possible. CBD has also helped with my acid reflux such that I don't have it anymore. At least one source I read stated that too much THC can suppress stomach acid, which is not a good thing. Both THC and especially CBD help with tremors. They make mine disappear.

I do hope you can try CBD over harsh Rx, and hope it works for you. I'll check out your other post too. Be well!

The CBD oil has an interesting side effect on me...nightmares. I never have them, and one both nights I tried it.

After some Googling, it appears others have had this issue too. I guess I'll try it during the daytime.

Hi David,

So far so good, with the CBD (three days). My situation is compounded by the fact that, aside from PN, I have a number of other chronic auto-immune conditions, the worst being colitis. I am having a bad colitis flare (in fact, it never really stops, and I always test for inflammation in my body) right now.

But perhaps the CBD might help with the colitis . . . I certainly don't think it can make it any worse.

Anyway, to my point. In your original post you mused how CBD might function as a vasodilator. Interestingly, besides CBD I am presently doing my own self-trial of daily sildenafil (yes, Viagra!). I have persuaded my doctor to give me a very low daily dose (10-20mg) as there has been anecdotal and lab evidence that it can significantly mitigate diabetic neuropathy. Of course, the fly in the ointment is that diabetic and idiopathic represent different mechanisms--the vasolidator component might be what works for diabetics who lack the proper blood supply to nerves (poorly written, but you get my drift).

Two weeks in, I can say that my neuropathy symptoms (mainly constant fasciculations and fluid paresthesias) are improved from the weeks before--though this condition varies like hell anyway.

Fingers crossed that either of the self-meds--perhaps both--produce results.

Cheers

PS a question--you probably say this, but do you think that CBD merely mitigates symptoms or does it having any impact at all on the actual condition?

PS can’t find the modify/ edit button so just to correct that’s hematoma not haematology!


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David:

Hi. My husband has had idiopathic peripheral neuropathy for 30 years. We live in NYC and he received his medical marijuana card last week. Alas we can't afford the product. He does however use the CBD Oil. We got the gummy bears. 250 strength. He said "I need the 500". So tomorrow I will go to the Vape Store and get the bag of gummies (or should I get tincture)? He is also on Tramadol but we would like to have him get off drugs. That would be a blessing but until we find the correct kind of cbd oil, well Tramadol is a godsend.

What do you think? Should I purchase the gummies, or the tincture. What happens when one uses the 500? Does it relax you? I have muscle spasms and the only thing that helps is Theraworx. Now that product is a miracle.

Your input is most welcome, believe me. Thank you in advance

Melody

Hi all, long time, no visit.
I was just researching this subject the other day. One time I read the owner of Charlottes Web, the famous marijuana strain that helped the little girl with seizures (made all the news), say that cbd alone really didn't achieve much and it needed thc for benefits. I can't find the quote anywhere.

I'm glad some here are finding relief from CBD. I need to look into it again. I use Thc dominant marijuana every night for pain and sleeping, but would like some relief during the day. I'm on Lyrica, which actually seems to help, but it leaves me groggy and kind of dumb, if you know what I mean.

I have to admit that the wide-spread sales and marketing of CBD lately has me put-off. Almost a fad-like vibe to it, with claims that it helps with just about anything that you might suffer with. I wish they would do proper testing for everyone and sort out the real from the fables. Until then, I'll keep an eye on this thread and see how others are doing on it.

I could certainly use some relief from the conditions you listed, that I marked in bold.

I'm not sure how/where to buy CBD, but here in California both medical and recreational use is legal.