Thank you David for the wealth of information you have provided on the use of CBD for SFN and PN. There is nothing like a testimonial by one of our own to motivate me to try something new.

I have used the salve for muscle aches and pains for awhile. One night I decided to try it on my lips for the chronic burning pain and it completely relieved the burning. I now use it on the daily. It's also better for dry lips then the commercial alternatives.

Since CBD is legal I will begin experimenting immediately. What have I got to lose?

Thanks again.
carol

Thank you for your kind words, Carol.

Honestly, I'm just hoping it helps people out there like it has me. It's not a cure all, well not for now, but it have dramatically improved my life as you know. I've done what I tend to do, which is extensive research and personal experimentation, and these are my results.

And yes, what do we have to lose? Unlike some other things I've tried, it is also very rare to have side effects and even rarer to have major ones, so all the better.

I'm so glad the salve had worked for you. I use it for my burning and itching on my lips, where it gets rid of it immediately, and on other parts, where it makes a major difference. I hope you continue to see results and more of them going forward.

For anyone wondering what salve we are using for this purpose, it's the regular one from Fully Activated. I imagine other products could do the same, but this one is cheap, from a great company, and with only organic natural ingredients. They also have an actual lip balm, which is almost the identical formulation as the salve. But I've been meaning to try other topicals myself and will soon.

WOW!

Thanks David! I had wondered how you were doing and apparently you have been doing quite well, thanks to CBD.

Unfortunately, CBD is not legal in my state and my pain mgmt doctors would stop treating me if I tried it at this point. But I hope things will change soon, as I have read many positive points on using CBD and yours really detailed all it has to offer.

So glad you are doing well and it made such a difference in your life. Please keep us posted.

Well, hello! It's nice to hear from you. It's been too long!

I often wonder how you're doing. I hope you're doing well, or at least as well as can be expected given all we have to deal with.

I'm relatively. The CBD has really helped. My neuropathy has progressed since we last spoke, but the CBD has done a lot for me. It came out of no where. Once important thing it has done is indicate that inflammation is a serious component of my disease. CBD is an anti-inflammatory and it's in this respect that it's done the most systematic good for me.

A question, are you sure CBD from hemp is illegal? You're in Virginia, right? Technically, the DEA claims it's a schedule 1 drug, those morons. But recently the first cannabis derived medicine was approved by the FDA, so the DEA will almost certainly be forced to remove CBD from the schedule 1 listing. The drug is called epidiolox and all it is is CBD.

I also found This in case it's relevant: Virginia's Limited CBD and THC-A Oil Law - MPP.

Regardless, American companies ship to all states, so it wouldn't be an issue to get it. But your doctor might be a problem. I find his/her position so sad and typical.

I believe the new farm bill in the USA has passed the senate and will become law sooner than later. If so, and if it doesn't change, CBD from hemp will be legal federally, or so my American friends are saying.

If you think I can help, let me know. And I do know people all over the states, so I can ask someone in your state, if you like.

Either way, it was nice to hear from you!


EDIT: Here is some information about what's happening with the 2018 Farm Bill: Farmers hope 218 Farm Bill will lift 8-year ban on hemp - UPI.com

Hi David
I'm glad that you found a treatment that works for you
and thanks for the info about the CBD!

Hi!

It's been so long! I hope you're doing alright.

Thank you. I appreciate that. It's definitely working for me, but so far it has been more of symptoms treatment than healing I guess, though it's still too early to tell and I can't be sure even now. It may be helping me in ways that are not obvious to me. I hope it can help you too if you end up trying it!

Hello David, and thank you for your outstanding work here! This is one of the best threads ever posted within this forum. Indeed, I am a long-time sufferer with most of the symptoms you have, and mine are a result of Lyme Disease with its most common coinfections, Babesia and Bartonella.

I developed my first symptoms in 2005 at age 45 and now, at age 59, I have many years of education in both Neuropathy (and in my own case Small Fiber Neuropathy), and Lyme disease, too.

Indeed, having Lyme has forced me to literally obtain a medical education!

I have been on and off this forum for many years, during which time I was very grateful for Mrs. D. and her outstanding guidence (and I hope she is doing better?).

David, I would like to chat with you directly about the topic here, and what is the best way to do so?

Many thanks!

David

Hello again, David!

I am rapidly coming up to speed on CBD and its various forms and, again, many thanks for your outstanding posts!

OK, questions ...

As a 59-year old male who weighs 180 pounds (20% over my ideal weight), and suffers primarily from Lyme-related SFN (and cervical spine issues), what oral capsule dosage (in mg) from a vendor such as "Bluebird" or "Fully-Activated" would you recommend for potential pain relief?

Specifically, Bluebird sells 15 mg capsules (quantity 30) for $40.00, whereas "Fully-Activated" sells 30 capsules ranging up to 105 mg of CBD at prices of $180.00 for the 105 mg (gasp!).

I am someone who wants to simply pop a capsule rather than having to play compounding pharmacist (grin).

Also, is the CBD best absorbed with or without food (or does it matter)?

Many thanks, and I look forward to your comments!

David

Hello all!

I ordered a 30-day trial of "Full Spectrum CBD" capsules from "Fully-Activated" in Colorado, after a long and productive chat with its owner, Nick.

I will take a total of 90 mg daily in two-divided doses for my various Lyme-related neuropathies (and aches and pains), and then report back here. I am currently not on any other medication, so I make an excellent test subject.

We arrived at 90 mg in total daily, as it appears that an effective dose is one-half of your body weight daily (and I weigh 180 pounds). I will also take it on an empty stomach.

I did a lot of research in the last 24-hours and, needless to say, am very impressed by the potential of the cannabinoids! These suggest a whole new era in pain management, and I look forward to taking my first dose!

David