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Old 12-01-2018, 08:38 AM #1
glenntaj glenntaj is offline
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glenntaj glenntaj is offline
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Default I did stop--

--taking Gabapentin as the symptoms waned, but since I had gotten up to 2700mg/day it took me some nine months to wean off it completely. The standard protocols with Gabapentin reduction tend to recommend a reduction of 100mg/week by I went even more slowly as I wanted to minimize any chance of major rebound pain or increased seizure possibility due to central nervous system signalling upregulation during the Gabapentin redgimen (Gabapentin tends to work by suppressing central nervous system signalling rate as many anti-seizure meds do).

I wasn't on any special nutritional regimen other than the general recommendations that tend to be made--I took 1000mcg of methylcobalamin B12 three times a week, fish oil and magnesium citrate each day. I tried a trial of 100mg/day R-lipoic acid for some months but didn't think it was having much of a effect so I weaned down and stopped that.

There may have been some slight autonomic symptoms from time to time, though I emphasize slight, mostly regarding blood pressure and sweat responses. It is common for people with small fiber syndromes to have some degree of autonomic symptomology though for the majority these tend to be minor and often subclinical.
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Old 03-26-2019, 04:30 PM #2
changejobs changejobs is offline
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Default

Quote:
Originally Posted by glenntaj View Post
--taking Gabapentin as the symptoms waned, but since I had gotten up to 2700mg/day it took me some nine months to wean off it completely. The standard protocols with Gabapentin reduction tend to recommend a reduction of 100mg/week by I went even more slowly as I wanted to minimize any chance of major rebound pain or increased seizure possibility due to central nervous system signalling upregulation during the Gabapentin redgimen (Gabapentin tends to work by suppressing central nervous system signalling rate as many anti-seizure meds do).

I wasn't on any special nutritional regimen other than the general recommendations that tend to be made--I took 1000mcg of methylcobalamin B12 three times a week, fish oil and magnesium citrate each day. I tried a trial of 100mg/day R-lipoic acid for some months but didn't think it was having much of a effect so I weaned down and stopped that.

There may have been some slight autonomic symptoms from time to time, though I emphasize slight, mostly regarding blood pressure and sweat responses. It is common for people with small fiber syndromes to have some degree of autonomic symptomology though for the majority these tend to be minor and often subclinical.
i notieced you took Gabapentin for your SFN. how long were you on it. did you have any side effects? how did you know is was time to come off it?
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