advertisement
Reply
 
Thread Tools Display Modes
Old 09-26-2018, 01:13 PM #1
YoungNeuro YoungNeuro is offline
Junior Member
 
Join Date: Sep 2018
Posts: 8
5 yr Member
YoungNeuro YoungNeuro is offline
Junior Member
 
Join Date: Sep 2018
Posts: 8
5 yr Member
Default 22 year old male SFN - burning feet

Hello, I'm not even sure what I have as nothing has been found yet but I just wanted to share story here to see if anyone here is familiar with my issues.

So the problem is only present in my feet, I noticed this when I was 18 and went on a trip with school for 3 days. I noticed after a few hours of walking the soles of my feet were hurting. The pain would persist even after a whole night's sleep and is fairly unbearable without painkillers.

Then at age 21, I noticed my feet felt really hot in my shoes, when just sitting down in class, this feeling went away after a week but came back after a month or so and never really went away anymore.

So basically my feet would either feel as if they're burning or just have this weird or even cold feeling at some times. I do have days where this is much more bearable but in general it's been quite a pain to live with. (not really an issue when I don't wear shoes)

Tests I've done (all negative)
-EMG
-MRI of my back (due to my EMG showing something about my back but MRI was fine)

Last time I went to the physiotherpaist she described me vitamin B12 and a NSAID (Meloxicam) which didn't really do much. Also insoles due to my feet not being 100% normal, not sure what's exactly wrong with the shape.

Now I'm not sure what to do as I'm guessing doctors don't have any idea what I have either, I haven't discussed neuropathy with them and they haven't either.

What I tried myself (supplements for the most part)
-CBD Oil
-PEA supplement
-Fish oil
-Vitamin B12

I'm not sure if it's okay to try medication such as lyrica/gabapentin yet, I mentionned it but she said it's too soon yet and I haven't gone back since.

For long trips with lots of walking my only option are painkillers such as ibuprofen and paracetamol which don't really suffice either due to my feet hurting easily for longer periods of time.

Does anyone have similar experiences or any advice? Thanks.
YoungNeuro is offline   Reply With QuoteReply With Quote

advertisement
Old 09-27-2018, 01:04 PM #2
MCEC5 MCEC5 is offline
Junior Member
 
Join Date: Jul 2018
Posts: 19
5 yr Member
MCEC5 MCEC5 is offline
Junior Member
 
Join Date: Jul 2018
Posts: 19
5 yr Member
Default

Quote:
Originally Posted by YoungNeuro View Post
Hello, I'm not even sure what I have as nothing has been found yet but I just wanted to share story here to see if anyone here is familiar with my issues.

So the problem is only present in my feet, I noticed this when I was 18 and went on a trip with school for 3 days. I noticed after a few hours of walking the soles of my feet were hurting. The pain would persist even after a whole night's sleep and is fairly unbearable without painkillers.

Then at age 21, I noticed my feet felt really hot in my shoes, when just sitting down in class, this feeling went away after a week but came back after a month or so and never really went away anymore.

So basically my feet would either feel as if they're burning or just have this weird or even cold feeling at some times. I do have days where this is much more bearable but in general it's been quite a pain to live with. (not really an issue when I don't wear shoes)

Tests I've done (all negative)
-EMG
-MRI of my back (due to my EMG showing something about my back but MRI was fine)

Last time I went to the physiotherpaist she described me vitamin B12 and a NSAID (Meloxicam) which didn't really do much. Also insoles due to my feet not being 100% normal, not sure what's exactly wrong with the shape.

Now I'm not sure what to do as I'm guessing doctors don't have any idea what I have either, I haven't discussed neuropathy with them and they haven't either.

What I tried myself (supplements for the most part)
-CBD Oil
-PEA supplement
-Fish oil
-Vitamin B12

I'm not sure if it's okay to try medication such as lyrica/gabapentin yet, I mentionned it but she said it's too soon yet and I haven't gone back since.

For long trips with lots of walking my only option are painkillers such as ibuprofen and paracetamol which don't really suffice either due to my feet hurting easily for longer periods of time.

Does anyone have similar experiences or any advice? Thanks.
Ask your neurologist about small fiber neuropathy. A skin biopsy will help detect this.
MCEC5 is offline   Reply With QuoteReply With Quote
Old 09-28-2018, 11:37 PM #3
dogwalker dogwalker is offline
Member
 
Join Date: Jul 2013
Location: Vancouver, WA
Posts: 103
10 yr Member
dogwalker dogwalker is offline
Member
 
Join Date: Jul 2013
Location: Vancouver, WA
Posts: 103
10 yr Member
Default

Quote:
Originally Posted by YoungNeuro View Post
Hello, I'm not even sure what I have as nothing has been found yet but I just wanted to share story here to see if anyone here is familiar with my issues.

So the problem is only present in my feet, I noticed this when I was 18 and went on a trip with school for 3 days. I noticed after a few hours of walking the soles of my feet were hurting. The pain would persist even after a whole night's sleep and is fairly unbearable without painkillers.


Does anyone have similar experiences or any advice? Thanks.
My first symptom of SFN was severe burning feet, which started after a long day of walking in flimsy shoes. It tormented me daily for a year, then went away for several years, then returned more mildly, followed by some other sensory abnormalities. The things I found that helped my feet were: removing shoes whenever possible, avoiding any friction, pressure, or vibration on my soles as much as possible, changing shoes once or more over the course of a day, lidocaine patches (on top of feet even though it was only my soles that were burning--adhesive patches just don't work on the bottom), and menthol-type lotions such as Biofreeze, Max-Freeze, etc. The roll-on forms don't get your hands all greasy. Now there is also an Aspercreme lidocaine roll-on. I was really resistant to all my doctors' ideas of using a of using a systemic medication for such a localized problem and got the ideas for these topical products from this forum. Good luck!
dogwalker is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
echoes long ago (09-28-2018)
Old 09-29-2018, 10:25 AM #4
YoungNeuro YoungNeuro is offline
Junior Member
 
Join Date: Sep 2018
Posts: 8
5 yr Member
YoungNeuro YoungNeuro is offline
Junior Member
 
Join Date: Sep 2018
Posts: 8
5 yr Member
Default

Quote:
Originally Posted by dogwalker View Post
My first symptom of SFN was severe burning feet, which started after a long day of walking in flimsy shoes. It tormented me daily for a year, then went away for several years, then returned more mildly, followed by some other sensory abnormalities. The things I found that helped my feet were: removing shoes whenever possible, avoiding any friction, pressure, or vibration on my soles as much as possible, changing shoes once or more over the course of a day, lidocaine patches (on top of feet even though it was only my soles that were burning--adhesive patches just don't work on the bottom), and menthol-type lotions such as Biofreeze, Max-Freeze, etc. The roll-on forms don't get your hands all greasy. Now there is also an Aspercreme lidocaine roll-on. I was really resistant to all my doctors' ideas of using a of using a systemic medication for such a localized problem and got the ideas for these topical products from this forum. Good luck!
My main problem right now is that my feet will have this annoying burning sensation or just this annoying feeling by just sitting down with shoes on. Being this young I'm also not a big fan of taking these medications such as lyrica because for most people it doesn't seem to work that greatly anyway. It is interesting to experiment a bit with these lotions and such, I will look into it.

As for getting a diagnose I'm not sure if it's worth it, all I can think of is doing a skin biopsy but I haven't been to a neurologist and there don't seem to be any possible treatments, so I don't really see the point besides just owning it.
YoungNeuro is offline   Reply With QuoteReply With Quote
Old 09-29-2018, 10:26 AM #5
YoungNeuro YoungNeuro is offline
Junior Member
 
Join Date: Sep 2018
Posts: 8
5 yr Member
YoungNeuro YoungNeuro is offline
Junior Member
 
Join Date: Sep 2018
Posts: 8
5 yr Member
Default

Quote:
Originally Posted by MCEC5 View Post
Ask your neurologist about small fiber neuropathy. A skin biopsy will help detect this.
Thanks, I know this is possibly the best method of finding out whether you have SFN but I haven't checked with a neurologist yet, maybe I'll do so in time but I'm not sure what they can do for me even if I do get diagnosed.
YoungNeuro is offline   Reply With QuoteReply With Quote
Old 09-29-2018, 03:53 PM #6
MCEC5 MCEC5 is offline
Junior Member
 
Join Date: Jul 2018
Posts: 19
5 yr Member
MCEC5 MCEC5 is offline
Junior Member
 
Join Date: Jul 2018
Posts: 19
5 yr Member
Default

Quote:
Originally Posted by YoungNeuro View Post
Thanks, I know this is possibly the best method of finding out whether you have SFN but I haven't checked with a neurologist yet, maybe I'll do so in time but I'm not sure what they can do for me even if I do get diagnosed.
A bad Neuro will give you gabapentin and tell you to come back in 6 months. A good Neuro will work with you to find the underlying casue and try to treat that instead of just masking the symptoms with drugs that aren’t even meant to help with nerve pain. I think find the cause is the most important thing and having the biopsy will help you move forward in the process.
MCEC5 is offline   Reply With QuoteReply With Quote
Old 09-29-2018, 03:54 PM #7
MCEC5 MCEC5 is offline
Junior Member
 
Join Date: Jul 2018
Posts: 19
5 yr Member
MCEC5 MCEC5 is offline
Junior Member
 
Join Date: Jul 2018
Posts: 19
5 yr Member
Default

Quote:
Originally Posted by dogwalker View Post
My first symptom of SFN was severe burning feet, which started after a long day of walking in flimsy shoes. It tormented me daily for a year, then went away for several years, then returned more mildly, followed by some other sensory abnormalities. The things I found that helped my feet were: removing shoes whenever possible, avoiding any friction, pressure, or vibration on my soles as much as possible, changing shoes once or more over the course of a day, lidocaine patches (on top of feet even though it was only my soles that were burning--adhesive patches just don't work on the bottom), and menthol-type lotions such as Biofreeze, Max-Freeze, etc. The roll-on forms don't get your hands all greasy. Now there is also an Aspercreme lidocaine roll-on. I was really resistant to all my doctors' ideas of using a of using a systemic medication for such a localized problem and got the ideas for these topical products from this forum. Good luck!
How are you symptoms right now? Did you ever have symptoms in legs, arms, hands etc?
MCEC5 is offline   Reply With QuoteReply With Quote
Reply

Tags
due, emg, feet, noticed, pain

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Burning feet razzle51 Peripheral Neuropathy 17 03-01-2020 04:15 PM
My feet are burning! Dejibo Multiple Sclerosis 13 09-02-2012 08:59 PM
burning feet mistyangel On the Lighter Side 0 03-16-2012 07:18 AM
burning feet aksnow Peripheral Neuropathy 29 05-09-2007 10:52 PM
Burning feet doydie Multiple Sclerosis 2 10-29-2006 01:33 PM


All times are GMT -5. The time now is 10:13 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.