Hi All. Pleased to meet you. Was wondering for some observations/comment. It'd be appreciated. Neuro issues started 20 years again with what was termed Benign Fasciculations (thank God it wasn't ALS). No big deal if rather uncomfortable. 3/4 years ago I realised that I had some motor symptom issues and was dxed with PD. I'm doing okay generally with the disease although it was naturally something of a blow being dxed with a young family to raise. Oh well...……..
So I've been tootling along, doing my thing but have been dogged with peripheral neuropathy recently. Again, like the BFS it was more of a nuisance than anything but the crash came about 2 months ago when my thumb went numb and has been painful to the touch. This takes things onto a new level and is a concern. My neuro believes that sensory impairment is part and parcel of PD but very few of my PD friends can claim to have neuropathy. I reviewed the landscape and realised that I've been on Omeprazole for years and that lack of b12 due to this must be the culprit. So I went to my GP but she told me that my last two blood tests showed B12 levels at 350 (200 being the lowest threshold I believe). Irrespective, I have bought B12 lozenges and ingest them sublingually. No benefits yet as far as I can see. I bought some ALA and BOY does this stuff cause gastric distress. The capsules I bought were 600mg as this is the dosage I heard could repair nerves but there's not a cat in hell's chance that I could digest these as far as I can see. I can manage 200 daily currently and may try to titrate up but we'll see. Advice on taking this stomach wrenching stuff would be appreciated as well as any more general observations. All blood work is - according to my neuro - normal (ain't it always?!).


Thanks in advance to any contributors. Best.