advertisement
Reply
 
Thread Tools Display Modes
Old 01-25-2019, 07:46 AM #1
janieg's Avatar
janieg janieg is offline
Member
 
Join Date: Jan 2014
Location: Maryland
Posts: 792
10 yr Member
janieg janieg is offline
Member
janieg's Avatar
 
Join Date: Jan 2014
Location: Maryland
Posts: 792
10 yr Member
Default Salt...

Has anyone else made a direct correlation between the severity of their neuropathy symptoms and salt intake?

I'm embarrassed at how long it's taken me to figure this out.
janieg is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
DogsPizzaBoooks (01-25-2019)

advertisement
Old 01-25-2019, 09:41 AM #2
DogsPizzaBoooks DogsPizzaBoooks is offline
Junior Member
 
Join Date: Jan 2019
Posts: 8
5 yr Member
DogsPizzaBoooks DogsPizzaBoooks is offline
Junior Member
 
Join Date: Jan 2019
Posts: 8
5 yr Member
Default

Quote:
Originally Posted by janieg View Post
Has anyone else made a direct correlation between the severity of their neuropathy symptoms and salt intake?

I'm embarrassed at how long it's taken me to figure this out.
Could you say more about what you've noticed?

Alley
DogsPizzaBoooks is offline   Reply With QuoteReply With Quote
Old 01-25-2019, 02:45 PM #3
kiwi33's Avatar
kiwi33 kiwi33 is offline
Grand Magnate
 
Join Date: Jan 2015
Location: Sydney, Australia.
Posts: 3,093
8 yr Member
kiwi33 kiwi33 is offline
Grand Magnate
kiwi33's Avatar
 
Join Date: Jan 2015
Location: Sydney, Australia.
Posts: 3,093
8 yr Member
Default

There is some evidence that mutant forms of some voltage-gated sodium channels are linked to peripheral neuropathy.

https://www.neurologyadvisor.com/pai...rticle/380020/
__________________
Knowledge is power.
kiwi33 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
janieg (01-25-2019)
Old 01-25-2019, 06:10 PM #4
janieg's Avatar
janieg janieg is offline
Member
 
Join Date: Jan 2014
Location: Maryland
Posts: 792
10 yr Member
janieg janieg is offline
Member
janieg's Avatar
 
Join Date: Jan 2014
Location: Maryland
Posts: 792
10 yr Member
Default

A couple of years ago, I sifted through my DNA results looked for the cited sodium channel mutations I could find. I didn't find anything then, but it's been a while. I need to re-check with the latest information.

Quote:
Originally Posted by kiwi33 View Post
There is some evidence that mutant forms of some voltage-gated sodium channels are linked to peripheral neuropathy.

https://www.neurologyadvisor.com/pai...rticle/380020/
janieg is offline   Reply With QuoteReply With Quote
Old 01-25-2019, 06:27 PM #5
janieg's Avatar
janieg janieg is offline
Member
 
Join Date: Jan 2014
Location: Maryland
Posts: 792
10 yr Member
janieg janieg is offline
Member
janieg's Avatar
 
Join Date: Jan 2014
Location: Maryland
Posts: 792
10 yr Member
Default

Without going into all the gory details (unless you want them), here's what I can say conclusively at this point:

Moderate/high salt meals ramp up my burning symptoms immediately and last for hours. My thirst is pretty extreme. Despite drinking glass after glass of water, I'm still subject to incapacitating cramping in my feet and legs. If I have a salty meal in the evening, I'm guaranteed to wake up during the night with horrible cramps. I've even had what I can only describe as abnormal, widespread cramps where my entire leg feels like it's seized...for lack of a better word.

I'm also at the point where even if I don't overdo the salt in the evening, I still can't get through the night without waking up and having to drink water due to my "buzzing" symptoms that will make me up.

In the past month, I've started eating this substantial yogurt concoction at lunch instead of my normal soup or salad. It suddenly occurred to me how much better I've been feeling during the day, only to start burning in the evening. When I started experimenting with really low salt meals in the evening, that bad evening burn didn't manifest itself.


Quote:
Originally Posted by DogsPizzaBoooks View Post
Could you say more about what you've noticed?

Alley
janieg is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
DogsPizzaBoooks (01-25-2019)
Old 01-26-2019, 07:11 AM #6
glenntaj glenntaj is offline
Magnate
 
Join Date: Aug 2006
Location: Queens, NY
Posts: 2,855
15 yr Member
glenntaj glenntaj is offline
Magnate
 
Join Date: Aug 2006
Location: Queens, NY
Posts: 2,855
15 yr Member
Default Anyone with cramping issues--

--should consider a magnesium supplement, and one that is well absorbed and not just dumped into the large intestine where it will tend to stimulate the bowel. Magnesium citrates or malates are probably better for this, instead of the usual magnesium oxide.

The body needs a balance of electrolytes, and those with too much sodium and not enough magnesium are quite common.

One should take one's magnesium supplements at a different time from any calcium supplements, as the tend to compete for absorption. And, there may be some drug contraindications, as magnesium may interfere with some drug absorptions, but one can usually find out about his through one of the more reputable drug interaction sites we have in our Useful Websites area here.
glenntaj is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
echoes long ago (01-26-2019), janieg (01-26-2019)
Old 01-26-2019, 09:52 AM #7
janieg's Avatar
janieg janieg is offline
Member
 
Join Date: Jan 2014
Location: Maryland
Posts: 792
10 yr Member
janieg janieg is offline
Member
janieg's Avatar
 
Join Date: Jan 2014
Location: Maryland
Posts: 792
10 yr Member
Default

I've actually been taking 200 mg of magnesium threonate a day for probably a year now. I chose that form after doing some research, but really don't understand the differences well, nor have an idea of how much I should be taking.

Quote:
Originally Posted by glenntaj View Post
--should consider a magnesium supplement, and one that is well absorbed and not just dumped into the large intestine where it will tend to stimulate the bowel. Magnesium citrates or malates are probably better for this, instead of the usual magnesium oxide.

The body needs a balance of electrolytes, and those with too much sodium and not enough magnesium are quite common.

One should take one's magnesium supplements at a different time from any calcium supplements, as the tend to compete for absorption. And, there may be some drug contraindications, as magnesium may interfere with some drug absorptions, but one can usually find out about his through one of the more reputable drug interaction sites we have in our Useful Websites area here.
janieg is offline   Reply With QuoteReply With Quote
Old 01-26-2019, 11:45 AM #8
tnthomas's Avatar
tnthomas tnthomas is offline
Member
 
Join Date: Oct 2011
Location: High Desert, Calif.
Posts: 160
10 yr Member
tnthomas tnthomas is offline
Member
tnthomas's Avatar
 
Join Date: Oct 2011
Location: High Desert, Calif.
Posts: 160
10 yr Member
Default

I never thought that salt could play a part in PN. I quit both drinking alcohol and using salt in 2006 in response to my diagnosis of high blood pressure.
But, I did not become aware of my PN until 2011.

My PN of course is "idiopathic", largely just numbness with an occasional nerve zap.

Nothing seems to either help or make the PN flare, have taken B-12 in the past to where it actually showed increased levels in lab results(about 429->912).

I still take magnesium supplements, don't really see any dramatic effect, but magnesium is essential in different ways especially in support of the nervous system.
__________________
3/1/2011- diagnosed with Peripheral Neuropathy
April 2012- Treated for Hepatitis C, achieved SVR
tnthomas is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
janieg (01-27-2019)
Old 01-27-2019, 04:57 AM #9
Jon_sparky Jon_sparky is offline
Member
 
Join Date: Jul 2013
Posts: 145
10 yr Member
Jon_sparky Jon_sparky is offline
Member
 
Join Date: Jul 2013
Posts: 145
10 yr Member
Default

Quote:
Originally Posted by janieg View Post
Has anyone else made a direct correlation between the severity of their neuropathy symptoms and salt intake?

I'm embarrassed at how long it's taken me to figure this out.
I have had it over 30 years, and still have not made the connection to salt intake and pain, I might try that tomorrow!
My Neurologist just put me on a anti inflammation dairy free diet, but I am noticing more EM pain, so maybe my recent modifications include more salt?
I am talking to a dietician in two weeks, I will see what she thinks.
I also have the unquenchable thirst, used to have horrendous cramping, but now only my high arches cramp.
Jon_sparky is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
janieg (01-27-2019)
Old 01-27-2019, 11:14 AM #10
janieg's Avatar
janieg janieg is offline
Member
 
Join Date: Jan 2014
Location: Maryland
Posts: 792
10 yr Member
janieg janieg is offline
Member
janieg's Avatar
 
Join Date: Jan 2014
Location: Maryland
Posts: 792
10 yr Member
Default

Despite a very low salt meal yesterday evening, I was still hit by cramping during the night. The good news is that the burning was minimal, which I'll gladly take.

I just don't understand what could be wrong that my muscles can't make it through the night without cramping. I used to be able to sleep eight solid hours without ever waking up for any reason, but now it seems I can't go four-to-five hours without having to re-hydrate. My basic kidney values are fine.

Last edited by janieg; 01-27-2019 at 12:16 PM.
janieg is offline   Reply With QuoteReply With Quote
Reply

Tags
embarrassed, figure, intake, salt, symptoms

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
how much salt in the salt water rinse ? nyuszisue Dentistry & Dental Issues 2 04-17-2014 04:46 PM
sea salt bath wtrpk Traumatic Brain Injury and Post Concussion Syndrome 2 09-07-2011 10:38 AM
Salt is not all bad reverett123 Parkinson's Disease 2 05-24-2011 07:40 AM
salt do you really know what you are eating? lou_lou Parkinson's Disease 0 11-22-2009 09:52 AM
Dr. says to eat more salt?! katty Multiple Sclerosis 7 08-20-2009 10:17 AM


All times are GMT -5. The time now is 05:19 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.