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Old 03-02-2019, 06:20 PM #1
JKPHOTO JKPHOTO is offline
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JKPHOTO JKPHOTO is offline
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Hi Y'all.

I just wanted to check in and how things are going. The last two weeks my feet have become much number, but a painful, gnawing numbness. I am using a cane now. I probably should have used it awhile ago, but I was in denial that I needed one. In addition to the Gabapentin, the doctor put my on 75mg of Lyrica. I find I am dropping things and figure it is the meds. But the balance issue could be causing it also. The doctor said my recent labs were all out of the Diabetic range. I probably could not do it without the meds, but that is my goal. My doctor told me the my body will adjust to the pain. I should ask him: Just when will that kick in? I have gone through a lot of supplements and specialists and I now I wonder if I should continue these since they don't seem to be having any positive effect. Music, comedy and my cat helps me cope.
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Old 03-15-2019, 07:06 PM #2
JKPHOTO JKPHOTO is offline
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JKPHOTO JKPHOTO is offline
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This week I saw a neuroligist that specializes in neuropathy. He uses a device that he applies to your feet and hands that uses electrical current. He says upfront that it is not a cure and the nerves that are damaged are gone. He says it may result in more sensation, less pain and numbness and better balance. He says that he does not apply it to that face and that is where a lot of my pain is now. I have had similar treatment, although not the same, and I got no results. I am spiritually, mentally and physically exhausted from trying every treatment available with no results. This treatment is not covered by my insurance and the cost would be about $3000.00-$5000.00 dollars. It is twice a week for 3 months. Adding travel expenses, it could get very pricey. I don't think I can handle another let down. Since my condition is quite severe, I am wondering if it's worth trying, or I just, at this point to accept the fact that not much can be done and live with it and it just will get worse. I would like to hear your opinions on this.

Thank You.
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Old 03-16-2019, 10:15 AM #3
IPN1967 IPN1967 is offline
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IPN1967 IPN1967 is offline
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JKPhoto - When you say "device" was it PEMF (Pulsed Electromagnetic Field), TENS (transcutaneous electrical nerve stimulation), laser or Hako-Med (horizontal therapy)?

Have you tried CBD oil for the pain?

There is currently a company called WinSanTor working on peripheral neuropathy topical medicine that re-purposed a drug called Pirenzepine. Since Pirenzepine is already FDA approved it should make it easier for this to be approved (fingers crossed)

Here is a link to the company:

Home - WinSanTor

Hope this helps


Quote:
Originally Posted by JKPHOTO View Post
This week I saw a neuroligist that specializes in neuropathy. He uses a device that he applies to your feet and hands that uses electrical current. He says upfront that it is not a cure and the nerves that are damaged are gone. He says it may result in more sensation, less pain and numbness and better balance. He says that he does not apply it to that face and that is where a lot of my pain is now. I have had similar treatment, although not the same, and I got no results. I am spiritually, mentally and physically exhausted from trying every treatment available with no results. This treatment is not covered by my insurance and the cost would be about $3000.00-$5000.00 dollars. It is twice a week for 3 months. Adding travel expenses, it could get very pricey. I don't think I can handle another let down. Since my condition is quite severe, I am wondering if it's worth trying, or I just, at this point to accept the fact that not much can be done and live with it and it just will get worse. I would like to hear your opinions on this.

Thank You.
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"Thanks for this!" says:
Lerch (06-02-2019)
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