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Old 03-02-2019, 06:20 PM #11
JKPHOTO JKPHOTO is offline
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Hi Y'all.

I just wanted to check in and how things are going. The last two weeks my feet have become much number, but a painful, gnawing numbness. I am using a cane now. I probably should have used it awhile ago, but I was in denial that I needed one. In addition to the Gabapentin, the doctor put my on 75mg of Lyrica. I find I am dropping things and figure it is the meds. But the balance issue could be causing it also. The doctor said my recent labs were all out of the Diabetic range. I probably could not do it without the meds, but that is my goal. My doctor told me the my body will adjust to the pain. I should ask him: Just when will that kick in? I have gone through a lot of supplements and specialists and I now I wonder if I should continue these since they don't seem to be having any positive effect. Music, comedy and my cat helps me cope.
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Old 03-15-2019, 07:06 PM #12
JKPHOTO JKPHOTO is offline
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This week I saw a neuroligist that specializes in neuropathy. He uses a device that he applies to your feet and hands that uses electrical current. He says upfront that it is not a cure and the nerves that are damaged are gone. He says it may result in more sensation, less pain and numbness and better balance. He says that he does not apply it to that face and that is where a lot of my pain is now. I have had similar treatment, although not the same, and I got no results. I am spiritually, mentally and physically exhausted from trying every treatment available with no results. This treatment is not covered by my insurance and the cost would be about $3000.00-$5000.00 dollars. It is twice a week for 3 months. Adding travel expenses, it could get very pricey. I don't think I can handle another let down. Since my condition is quite severe, I am wondering if it's worth trying, or I just, at this point to accept the fact that not much can be done and live with it and it just will get worse. I would like to hear your opinions on this.

Thank You.
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Old 03-16-2019, 10:15 AM #13
IPN1967 IPN1967 is offline
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JKPhoto - When you say "device" was it PEMF (Pulsed Electromagnetic Field), TENS (transcutaneous electrical nerve stimulation), laser or Hako-Med (horizontal therapy)?

Have you tried CBD oil for the pain?

There is currently a company called WinSanTor working on peripheral neuropathy topical medicine that re-purposed a drug called Pirenzepine. Since Pirenzepine is already FDA approved it should make it easier for this to be approved (fingers crossed)

Here is a link to the company:

Home - WinSanTor

Hope this helps


Quote:
Originally Posted by JKPHOTO View Post
This week I saw a neuroligist that specializes in neuropathy. He uses a device that he applies to your feet and hands that uses electrical current. He says upfront that it is not a cure and the nerves that are damaged are gone. He says it may result in more sensation, less pain and numbness and better balance. He says that he does not apply it to that face and that is where a lot of my pain is now. I have had similar treatment, although not the same, and I got no results. I am spiritually, mentally and physically exhausted from trying every treatment available with no results. This treatment is not covered by my insurance and the cost would be about $3000.00-$5000.00 dollars. It is twice a week for 3 months. Adding travel expenses, it could get very pricey. I don't think I can handle another let down. Since my condition is quite severe, I am wondering if it's worth trying, or I just, at this point to accept the fact that not much can be done and live with it and it just will get worse. I would like to hear your opinions on this.

Thank You.
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Old 03-16-2019, 12:22 PM #14
JKPHOTO JKPHOTO is offline
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All it says it that it generates a sophisticated electronic signal with a wide frequency band to safely treat the pain, tingling, burning and numbness.
So I am not sure it is one of those devices that you mentioned.

I have tried CBD, but I am not sure if I am taking the right stuff. The one I have used is full spectrum hemp extract 325mg. 2 capsules a day. I did not see any results, but I have not been using it very long. There is a high-end cannabis dispensary in my area, they may have better CBD. The product I got was from a health food store. I will read up on the CBD posts on this site.
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Old 03-16-2019, 06:27 PM #15
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Quote:
Originally Posted by JKPHOTO View Post
All it says it that it generates a sophisticated electronic signal with a wide frequency band to safely treat the pain, tingling, burning and numbness.
So I am not sure it is one of those devices that you mentioned.

I have tried CBD, but I am not sure if I am taking the right stuff. The one I have used is full spectrum hemp extract 325mg. 2 capsules a day. I did not see any results, but I have not been using it very long. There is a high-end cannabis dispensary in my area, they may have better CBD. The product I got was from a health food store. I will read up on the CBD posts on this site.

i would definitely find out what kind of a device it is and research it thoroughly before i would hand over that kind of money.
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Old 03-16-2019, 06:29 PM #16
IPN1967 IPN1967 is offline
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JKPHOTO,

Bioavailability is one of the key aspects of CBD oil.

Bioavailability is the percentage of CBD that is actual absorbed and introduced into the body. Edibles have the lowest bioavailability with ranges from 4% - 20%. Sublingual (under tongue for two minutes) is much higher bioavailability with ranges from 20% - 35%.

So 325 mg via capsules would only introduce between 14 - 65 mg of CBD into your system. If you used drops under the tongue for two minutes your bioavailability of 325 mg of CBD would be between 14 - 114 mg of CDB

Make sure the items you are purchasing have the amount of CBD per serving on label which is usually one dropper which equals 1 ml

In case you haven't read the CBD thread yet, I have the link below

The Amazing Benefits of CBD: The Non-Psychotropic Cannabinoid and Neuropathy

Take care

Quote:
Originally Posted by JKPHOTO View Post
All it says it that it generates a sophisticated electronic signal with a wide frequency band to safely treat the pain, tingling, burning and numbness.
So I am not sure it is one of those devices that you mentioned.

I have tried CBD, but I am not sure if I am taking the right stuff. The one I have used is full spectrum hemp extract 325mg. 2 capsules a day. I did not see any results, but I have not been using it very long. There is a high-end cannabis dispensary in my area, they may have better CBD. The product I got was from a health food store. I will read up on the CBD posts on this site.
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