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Old 07-10-2019, 08:21 PM #1
dollymolly dollymolly is offline
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Hi Sass,

Can you elaborate on which medications for neuropathy actually cause neuropathy? I’ve read about this on a few sites but they never name meds.

I am 10 weeks post-op robotic hysterectomy surgery and my nerve pain started in the 3rd week after taking a bacterial antibiotic for an infection. My ulnar nerves in my elbows are most affected but also have nerve pain down my legs. Thought I had tendinitis in my hands, went to see my Ortho and he said it was neuropathy and prescribed Gabapentin. I was unable to use my ring & pinky fingers on both hands. The meds resolved this but the burning pain still remains in my elbows.

My OBGYN stated it’s just nerve inflammation and will resolve itself on its own, it just takes time. There is a condition called “Surgical Induced Nueropathy” that happens to about 50% of individuals who go through surgery. My doc does not believe this is the case. I am highly suspect of the antibiotic though.

Prior to surgery, I was completely normal, no issues with nerves. I had a back injury 2 years ago but that healed nicely. Truly struggling to feel normal again.
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Old 07-11-2019, 10:11 PM #2
Sassafrass Sassafrass is offline
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This is a partial list of mitochondria toxic drugs. I have seen more comprehensive ones online that include Cymbalta, a first line of action for neuropathy.

Cut and paste because I have less than 10 posts.
**

Meformin, a common diabetes drug, also causes mitochondrial dysfunction, which in turn can create neuropathy.

Last edited by Jomar; 07-11-2019 at 10:35 PM. Reason: Per NT guidelines on new memeber linking & circumvention
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Old 09-04-2019, 11:21 AM #3
4aulkner 4aulkner is offline
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Quote:
Originally Posted by Sassafrass View Post
This is a partial list of mitochondria toxic drugs. I have seen more comprehensive ones online that include Cymbalta, a first line of action for neuropathy.

Cut and paste because I have less than 10 posts.
**

Meformin, a common diabetes drug, also causes mitochondrial dysfunction, which in turn can create neuropathy.
If you look at the "side effects" of Lyrica, you'll discover that loss of balance is one (and no thanks, I don't need any help with that) and neuropathy's another!! When I discovered that two years ago, I weaned myself off the stuff. Felt much better - brain fog went away and so did 40 pounds! Good all round.
Another of the deadly drugs is any of the fluoroquinolones. Cipro, etc. Really bad - they now have a black box warning.

How come your list of drugs that can cause neuropathy didn't show up anywhere? Or did they, and I missed them?
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Old 07-11-2019, 10:16 PM #4
Sassafrass Sassafrass is offline
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I want to add that I am currently in a flare as of a few hours ago. This is not a linear healing at all. It truly is one step forward, two back. My only comfort that is that the flares only last a few days and the symptoms continue to change and lessen with the months.
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Old 08-17-2019, 12:18 PM #5
mhw69 mhw69 is offline
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Quote:
Originally Posted by Sassafrass View Post
I want to add that I am currently in a flare as of a few hours ago. This is not a linear healing at all. It truly is one step forward, two back. My only comfort that is that the flares only last a few days and the symptoms continue to change and lessen with the months.
I hope your healing process continues.
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Old 08-23-2019, 09:02 AM #6
CRPSinSC CRPSinSC is offline
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As I read your post, it is textbook to my life. I have been dx with CRPS/RSD, and I have literally 4 family members who have the same. My Dr. doesn't spend a lot of time on dx, as he tells me that in short, my nervous system and brain are messed up. It's trivial to hear that at first, but my Dr. has numerous degrees, is brilliant, and I've come to really understand the finer detail of what he's saying to me. He tells me that going all over the place and getting dx. doesn't do a lot to manage what is and will be my condition, which is lifelong. When the nervous system goes off kilter, which mine has, it's more about accepting, coming to terms, managing symptoms and learning how to live ...especially the part about "staying in my lane" on a daily basis.
My experience is, this is absolutely right. That's where I focus.
I do PT, which is good for the arthritis that I also have in spades....and it sets off my RSD...but overall, it helps me feel better elsewhere, as does general care and maintenance of my muscles.
ANY emotional matters affect my RSD first, literally. It's a trigger and I do all sorts of things to ensure I am at peace with myself and the rest of the world. If I am not balanced, there goes my sleep for days and nights, because my RSD rages along with my emotions. I do my best, but things happen, and the results are almost always the same for me as what you describe.
The eyebrow.....I've had that once or twice (crazy, you're the first person who shares this with me, and it was a memorable event to say the least).
Literally everything you described is part of my experience.
I manage sx, but having the brightest outlook possible and being at peace as best I can does not stop the fog in my head, and I struggle sometimes. That said, I am enjoying life again some.....from all that is my regimine. I am in pain mgt. and do take narcotics, gabapentin, a plethora of other stuff...
For me, a mix of Omega 3, Glucosamine/CHrondroitin and hyaluronic acid have helped me move overall better....It took 2 weeks to feel their effects....and Im not sure if it is just affecting the arthritis or if it also helps with the damage to the ligaments, tendons and muscles that zooming nerves do to all of those.....I think both.
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