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Old 09-17-2019, 07:37 PM #1
Ctman Ctman is offline
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Ctman Ctman is offline
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It has been one week now since I embarked on this journey. I have been on the supplements listed for 4 days now. I have not had a drink now in over one week (incredibly hard). Here is the status:
* Lightheadedness has improved every day...barely noticeable today
* Hands have improved...barely noticeable tingling today
* Skin crawling feeling on left ankle milder today
* Numbness in lips seems to have gone away
* Tingling in feet is about the same
* New symptom has been a the feeling of a hot pad on my left hip several times a day.
* I have had Heineken 0.0 two nights this last week (3 of them per night). It has helped allot as it has a great beer taste that I love.
The next week begins....
Hello friends...Update as of 9/17 is mixed. Hands and feet are about the same and the "hot pad" feeling on my hip has gone away. BUT...my lightheadedness is MUCH worse now..I have it all the time and if it progresses further I could be in tough shape! Also, The numbness in my lips has gotten worse and has expanded to more of my face. Also I have a bit of tingling higher in my arms and legs now. So after a month there is still progression. Did any of you have the lingering lightheadedness and the face numbness? Thanks for the help!!!
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Old 10-01-2019, 12:24 PM #2
sdm11 sdm11 is offline
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Originally Posted by Ctman View Post
Hello friends...Update as of 9/17 is mixed. Hands and feet are about the same and the "hot pad" feeling on my hip has gone away. BUT...my lightheadedness is MUCH worse now..I have it all the time and if it progresses further I could be in tough shape! Also, The numbness in my lips has gotten worse and has expanded to more of my face. Also I have a bit of tingling higher in my arms and legs now. So after a month there is still progression. Did any of you have the lingering lightheadedness and the face numbness? Thanks for the help!!!
Following. I have low level SFN (skin biopsy in normal range but very low normal), perhaps from alcohol use (wine lover). I've been drinking Nanny State (from Brew Dog), which is under 0.5% and a pretty good craft beer. My neurologist says that very minimal alcohol will have no effect in SFN, but I'm not sure. Anyone know?
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Old 10-12-2019, 05:34 PM #3
JTP1234 JTP1234 is offline
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Following. I have low level SFN (skin biopsy in normal range but very low normal), perhaps from alcohol use (wine lover). I've been drinking Nanny State (from Brew Dog), which is under 0.5% and a pretty good craft beer. My neurologist says that very minimal alcohol will have no effect in SFN, but I'm not sure. Anyone know?

My neuro told me I would be fine with "social" drinking, keep it very moderate. I think you will find a lot of folks on this board say any amount of alcohol makes it worse. Whether it just irritates the symptoms or actually makes it progress I don't think anyone knows. To me, logic would say small amounts of alcohol should not cause nerve damage, but I am not doctor.
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Old 10-12-2019, 06:31 PM #4
JTP1234 JTP1234 is offline
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Originally Posted by sdm11 View Post
Following. I have low level SFN (skin biopsy in normal range but very low normal), perhaps from alcohol use (wine lover). I've been drinking Nanny State (from Brew Dog), which is under 0.5% and a pretty good craft beer. My neurologist says that very minimal alcohol will have no effect in SFN, but I'm not sure. Anyone know?

Did the Neuro tell you to stop the wine completely? Ir did you go to the beer voluntarily?
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