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Old 09-05-2019, 04:10 PM #1
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Default Waking all night to urinate

Well, the Drs. have been useless in helping me with my new situation.
I have had idiopathic peripheral neuropathy for about 10 years now. Mainly in my hands and legs. I can't sit without icepacks, nor can I wear long pants or shoes.

For the past year, I've been waking up every hour on the hour to urinate. It's not the "I had to pee so bad, but nothing came out" kind of sensation. I literally RUN to the bathroom and have a full urination. I'm amazed I have that much liquid in my body. No, I don't drink liquid excessively and supposedly my prostate is fine (finger up the butt).

My first urologist was a joke and didn't listen to a word I said. He gave me pills to loosen my bladder so I could pee easier. I told him I pee TOO easily and he said "oh, lets give it a try anyway." Of course it didn't do a thing and I wasted 90 days until my next visit. Then he filled my bladder with a catheter and a scope of some sort up my butt. The next visit he didn't have a clue why I was there and I told him he filled my bladder and I was back for the results. He said the test was fine and tried to rx the same thing. I went home and sent in for a referral to a new dr. I'm waiting impatiently for the new dr's appt.

If I go to bed at 11:00, I'll wake up between 12:00 and 12:10. Then 1, then 2.... all the way until I finally just get up around 4 or 5. I'm tired all the time, it's not getting better and I'm very tired. It only happens if I'm lying down.

I thought I would throw it out to you folks and see if anyone has run across a similar situation.

Thanks for your time.
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Old 09-05-2019, 05:23 PM #2
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The information here might help you.

Neuropathy & Your Bladder | NeuropathyCommons
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Old 09-05-2019, 09:30 PM #3
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Default Neurogenic bladder?

I had kidney stones in 2016 and have a yearly with a urologist ever since. In the course of these interactions he checks voiding, we discuss symptons; it went like this: 2017 want meds to help? no thanks
2018 want meds? no thanks
2019 you need meds. ok

I was up extra, not hourly, which was a change. Better hydration didn’t explain it, but I was under another level of duress, not really needed.

Flomax, .4 has me up less to pee as I seem to fully clear. I was going a lot, but not clearing my bladder. It may not be your solution in sum, but could provide relief.

I still get up around the same amount, but not pressure and discomfort.

My best,

Jon
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Old 09-06-2019, 02:55 PM #4
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Originally Posted by KnowNothingJon View Post
I had kidney stones in 2016 and have a yearly with a urologist ever since. In the course of these interactions he checks voiding, we discuss symptons; it went like this: 2017 want meds to help? no thanks
2018 want meds? no thanks
2019 you need meds. ok

I was up extra, not hourly, which was a change. Better hydration didn’t explain it, but I was under another level of duress, not really needed.

Flomax, .4 has me up less to pee as I seem to fully clear. I was going a lot, but not clearing my bladder. It may not be your solution in sum, but could provide relief.

I still get up around the same amount, but not pressure and discomfort.

My best,

Jon
Thanks Jon,

Actually, the drug he gave me was Flomax. It didn't make me go less or more. My stream is consistent with what I've known as a full urination throughout my life. Like I said, I didn't know the body could hold 6 or 7 full urinations.

Thanks for the info!
Jim
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Old 09-06-2019, 03:01 PM #5
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The information here might help you.

Neuropathy & Your Bladder | NeuropathyCommons
Thank you. I'll start investigating this angle. My Drs. haven't put my neuropathy into the equation when working with me. I'll be sure they do now.
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