Hi Klebk123,
If you're still here, I'm sorry you have these unexplained symptoms. It sounds as if some doctors have been trying to find out what is going on with you--but not coming up with any answers. You don't mention what kinds of doctors you've been to but I hope they are competent ones.

You do know how to check into a doctor's background online, I hope. The information can be very helpful.

Hope you'll get some answers soon.

[QUOTE=agate;
You do know how to check into a doctor's background online, I hope. The information can be very helpful.
[/QUOTE]

Agate, please, when you have a spare minute, let me know how to check on a doctor's background. Many thanks.

Hello,

yes im still here. But unfortunately it has not resolved yet. I still get flares every one or two weeks and my skin gets more numb every time. This has been going on for 6 months now. I have been to about ten different docotors since then and no one could find anything. A tropical expert found i had a strangyloides infection at some point and i got treatment for that, but it didnt change the symptoms. I had diabetes checked, borreliosis, cancer, gluten, MS, NMO, and several others, all negative.
I had a low positive ANA titer of 1:80 which could indicate an autoimmune disorder. But to be sure the value is still too low.
Im out of ideas now and just hope it will stop at some time by itself.
If anyone got any ideas im open :-)
And yes i checked for the reputation of the doctors before.l and chose good on. Even went to the well kmown University Hospitals in Aachen and Berlin. No results...

Regards

Wren, it is so important to get a competent doctor that spending some time doing a Google search is well worth while. If you enter the doctor's name in the window at the top of the screen, you should bring up any number of Websites where the doctor is listed. Many of them will be the doctor's own Websites--usually in connection with hospitals or clinics he/she is affiliated with.

If you look at those, you can be fairly sure that they've been scrubbed of any negative information but at least you can probably find out a few facts such as the doctor's training and board certification.

Some of the links will be for sites like doximity.com and healthgrades.com. Those are sites where you can often find more information, including patients' ratings and comments.

I read through the comments and pay attention to the ratings. Some of the ratings may be undependable--coming from people with a grudge or from the doctor's personal friends, for instance--but they're a way of getting a general idea of what the doctor is like.

Klebk, I didn't realize that you weren't in the US. I'm not informed on how to find information about doctors where you are but my guess is that there are ways. You just have to remember that not everything on the Internet is true or valid.

I've sometimes called a doctor's office for the basic information--where a doctor was trained and when, whether board-certified. The doctors' offices were always quite willing to provide the information.

This sounds like small fiber neuropathy. It’s often triggered by an infection. Google it **

I am in an indetical situation as you. any luck? How are you