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-   -   Managing Peripheral Neuropathy/Neurostimulator results (https://www.neurotalk.org/peripheral-neuropathy/254780-managing-peripheral-neuropathy-neurostimulator-results.html)

only1betty 01-03-2020 12:59 AM

Lyrica is the worst drug to withdraw from if you ask me. Unfortunately I have gone through it with several, and Lyrica takes forever to safely reduce.

kiwi33 01-03-2020 01:57 AM

It could help if you checked out the Chiari/Syringomyelia forum here (https://www.neurotalk.org/arnold-chi...syringomyelia/).

Other members could be able to help you with both of these.

Quote:

Originally Posted by only1betty (Post 1282543)
I have a genetic defect called a Chiari One Malformation, which is a cyst at the base of my skull that causes the tonsils of your brain to slip down toward your neck. Also a syringohydromeglia from T3 to T12. This is a fluid filled sac inside my spinal cord that shouldn't be there


Hotfeet333 01-13-2020 07:41 PM

Thanks for sharing. I will be looking in to it. Hope you continue to improve.

only1betty 06-28-2020 01:40 AM

DRG reply
 
Quote:

Originally Posted by liquidz1 (Post 1282480)
Does this drg cover your whole legs or just feet..¿

So sorry to take forever to respond. The stimulator seems to cover my legs and much of the pain in my feet, though they will never be OK and I am still restricted in how far I can walk. I am now able to walk a mile but beyond that is resulting pain. I have somehow regained my balance over time as I never before could ride a bike but now do quite often and love the fun. I was an aficionado of biking for many years and lost it with my diagnosis. I will check back for any more needed questions. Good luck, I have actually regained my old life and happiness though it certainly was a long road.

Atticus 06-29-2020 01:25 AM

Quote:

Originally Posted by only1betty (Post 1287244)
So sorry to take forever to respond. The stimulator seems to cover my legs and much of the pain in my feet, though they will never be OK and I am still restricted in how far I can walk. I am now able to walk a mile but beyond that is resulting pain. I have somehow regained my balance over time as I never before could ride a bike but now do quite often and love the fun. I was an aficionado of biking for many years and lost it with my diagnosis. I will check back for any more needed questions. Good luck, I have actually regained my old life and happiness though it certainly was a long road.

Good to hear.


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