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Old 01-03-2020, 12:59 AM #11
only1betty only1betty is offline
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Lyrica is the worst drug to withdraw from if you ask me. Unfortunately I have gone through it with several, and Lyrica takes forever to safely reduce.
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Old 01-03-2020, 01:57 AM #12
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It could help if you checked out the Chiari/Syringomyelia forum here (https://www.neurotalk.org/arnold-chi...syringomyelia/).

Other members could be able to help you with both of these.

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Originally Posted by only1betty View Post
I have a genetic defect called a Chiari One Malformation, which is a cyst at the base of my skull that causes the tonsils of your brain to slip down toward your neck. Also a syringohydromeglia from T3 to T12. This is a fluid filled sac inside my spinal cord that shouldn't be there
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Old 01-13-2020, 07:41 PM #13
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Thanks for sharing. I will be looking in to it. Hope you continue to improve.
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Old 06-28-2020, 01:40 AM #14
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Does this drg cover your whole legs or just feet..¿
So sorry to take forever to respond. The stimulator seems to cover my legs and much of the pain in my feet, though they will never be OK and I am still restricted in how far I can walk. I am now able to walk a mile but beyond that is resulting pain. I have somehow regained my balance over time as I never before could ride a bike but now do quite often and love the fun. I was an aficionado of biking for many years and lost it with my diagnosis. I will check back for any more needed questions. Good luck, I have actually regained my old life and happiness though it certainly was a long road.
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Old 06-29-2020, 01:25 AM #15
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Quote:
Originally Posted by only1betty View Post
So sorry to take forever to respond. The stimulator seems to cover my legs and much of the pain in my feet, though they will never be OK and I am still restricted in how far I can walk. I am now able to walk a mile but beyond that is resulting pain. I have somehow regained my balance over time as I never before could ride a bike but now do quite often and love the fun. I was an aficionado of biking for many years and lost it with my diagnosis. I will check back for any more needed questions. Good luck, I have actually regained my old life and happiness though it certainly was a long road.
Good to hear.
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