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Old 02-15-2020, 08:32 PM #1
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Angry Any advice on Regenrative Stem Cell for PN

Hi All,
I am a new member. It's great to find such a wonderful forum. I am 50 years old and have had T2DM for a couple of years with the usual metabolic syndrome list of ailments. My PN is very severe to the point that I find it very difficult to focus on anything else due to the constant numbness, fire, etc. I was presented with an option for stem cell regenerative procedure costing close to 10K with no guarantees whatsoever. Has anyone had an experience with such new tech?
Thanks in advance,
TheBedouin
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Old 02-15-2020, 10:48 PM #2
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You are right, there are NO guarantees to anything including these stem cells and PRP and other Prolotherapy. Dr. Marc Darrow in our town has a huge clinic and on his many sites he has places to send him questions. Why not do that.

I've had some . Prolo work in some joints but not stem cells. I don't hear a lot of GOOD things and there is so much talk today about them.

I've had nerve damage for going on 10 yrs from hip replacement and posted in the PN area what works BEST for me, check it out. I've had a lot of burning, tingling and now not that much.. Lots of numbness from dead nerves which may never return. I manage, not happy but damage is done.

My best things that work are:

Grape Seed Extract
Inosine
Sphingln

And in the last year HGH homeopathic gel. Check out my posts in PN. c
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OA onset at 18, now 79. Fibro onset at 61, Hip Replacement "mess" 72 (nerve damage, IT band damage, shorter leg). Otherwise, pretty good health.

Most important supplement: grape seed extract
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Old 02-16-2020, 12:33 AM #3
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Hi TheBedouin

Welcome to NeuroTalk .

I am sorry to read about your PN.

I would be very dubious about using the stem cell treatment you have been offered. Stem cells are widely used in treatment of some lymphomas and leukaemias but not yet for much else.

Stem cell therapies are very much at the experimental stages for some neurological conditions

The information here might help you.

Nine Things To Know About Stem Cell Treatments A Closer Look at Stem Cells
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Old 02-16-2020, 06:22 PM #4
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Thanks Kiwi33 and Caroline2 for the detailed response and welcome. One of the reasons I asked the question is to gauge how much collective knowledge this great forum offers. I feel so helpless after having been to so many docs and they all telling me to go home and deal with it.

I am just now starting to try ALA, Potassium, Magnesium, and seeing some improvements. The sad truth is that no docs have ever asked me about my digestive problems, or even asked what I eat! When I was diagnosed with NAFLD 5 years ago, no dr told me to stop added sugars or what might be causing it. They are quickly to dismiss PN as yet another complication from diabetes and move on. I had a Never conduction study, but not an EMG. do you know much about that? I am all about the science and will not try anything before thoroughly investigating it. PN has turned my life upside down and I am simply scrambling for anything to get me back to normal functioning so I can work! It's becoming an existential threat! Any other pointers would be greatly appreciated, including dietary resources.
Thanks again for the response.
Cheers,
TheBedouin
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Old 02-16-2020, 09:08 PM #5
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I am surprised that your doctors did not refer you to what is called here an Accredited Practising Dietitian about your NAFLD. An APD is a health professional who could review your diet with you and then suggest healthy changes.

My understanding is that PN is a common side-effect of diabetes. As you say, both Nerve Conduction Studies and EMG are routine diagnostics.

This background information may help you.

Diabetic neuropathy: Types, symptoms, and causes
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Old 02-17-2020, 07:45 PM #6
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It's awful how much research I have to do on my own and call Dr friends to find out more. The sad truth is I KNOW more than they do!! No one said anything about Fructose or Glycogen stores of energy as fat in your liver!
Anyway, I started on Magnesium, Potassium, Alpha Lipoic Acid R- and S-ALA and happy to report some progress. Amazingly enough, klonopin actually seems to work on it as well. Have you seen anything around to support that?
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Old 02-17-2020, 08:13 PM #7
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Doctors can be needed for broken bones but thank goodness for health forums, these support groups have saved me. I've been working with these and friends for over 25 yrs, I could never count on allopathic doctors...I did however, start with an integrative type MD probably 15 yrs ago and WOW I learned so much.

You would really benefit there...and one of these type docs first found how much we are so depleted of DHEA as we age...Do some research there.
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OA onset at 18, now 79. Fibro onset at 61, Hip Replacement "mess" 72 (nerve damage, IT band damage, shorter leg). Otherwise, pretty good health.

Most important supplement: grape seed extract
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Old 02-18-2020, 12:55 AM #8
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Quote:
Originally Posted by thebedouin View Post
Amazingly enough, klonopin actually seems to work on it as well. Have you seen anything around to support that?
That is good that things are starting to work for you.

Klonopin is one of the benzodiazepine class of drugs. I have no experience of any of them.
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