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Old 04-04-2020, 07:30 PM #1
Dexter454 Dexter454 is offline
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Default R Lipoic Acid

Hello, I was just wondering if anyone knows what a good mg. of r lipoic acid would be good to start with. Just over the past month I have been over run by burning left foot on top, skin burning arms back, neck and stomach. And now tounge and gums and lips[which is the worse] I herd this supplement might help to take the burning down a little, Thank you,,,,
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Old 04-04-2020, 07:44 PM #2
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I also forgot to say I am not diabetic so wondering if this stuff is used for non diabetic P/N ?
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Old 04-04-2020, 08:00 PM #3
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What’s the cause of your SFN?

I don’t use Alpha Lipoic Acid. If you have amalgam fillings ALA is a chelating agent and can be dangerous.

Only thing that seems to help me is IVIG
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Old 04-04-2020, 09:19 PM #4
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Hi dcd2103,nI am not sure what caused my P/N I had hep c that was giving me problems 15 years ago while getting treatment I was diagnosed with P/N the neurologist said hep c caused it and the hep c doctor said he was full of beans and that they always blame hep c, so I am still not sure but I myself leaning toward the hep c causing it. I cleared the hep c 15 years ago but this P/N hung on, it was not to bad up until a year ago now it is coming on me fast almost every month a new symptom. I don't know if it is due to having it so long and being 61 years old or if something else being its driving force or all 3. This burning body stuff so far is the worse so that's why the r lipoic acid question. He did not tell me anything [my neurologist] just gave me a test, said I had sensory nerve damage and walked out, so I am not sure what type I have?
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Old 04-05-2020, 07:13 AM #5
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Do you have diabetes or thyroid/liver issues? These
metabolic causes can often trigger it.


Check out the pirenzipine post just before this one, I’m very interested in it as a potential treatment
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Old 04-05-2020, 12:32 PM #6
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Hi dcd2103, so far as my doctor says my liver function is good, I did an a1c test for diabetes back 3/2019 it was 5.2..... most likely due again soon. on 3/5/2018 i did a tsh thyroid test number was 55 mc IU/mL not sure what those number are but the doctor never had an issue with it.
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Old 04-06-2020, 10:06 PM #7
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Quote:
Originally Posted by Dexter454 View Post
Hi dcd2103,nI am not sure what caused my P/N I had hep c that was giving me problems 15 years ago while getting treatment I was diagnosed with P/N the neurologist said hep c caused it and the hep c doctor said he was full of beans and that they always blame hep c, so I am still not sure but I myself leaning toward the hep c causing it. I cleared the hep c 15 years ago but this P/N hung on, it was not to bad up until a year ago now it is coming on me fast almost every month a new symptom. I don't know if it is due to having it so long and being 61 years old or if something else being its driving force or all 3. This burning body stuff so far is the worse so that's why the r lipoic acid question. He did not tell me anything [my neurologist] just gave me a test, said I had sensory nerve damage and walked out, so I am not sure what type I have?
Ironic, I was dx'd with Hep C around the time my PN's sudden onset. I had thought the PN was precipitated by the Hep C causing Cryoglobulinemia. Cleared the hep C in 2012, thought the PN would then clear, but remains still to this day.
I was lucky, did the INF+Ribavirin+Victrellis Tx, only got to shot #16 and had to quit due to damage to optic nerve. Missed last 8 shots but was SVR nevertheless.
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3/1/2011- diagnosed with Peripheral Neuropathy
April 2012- Treated for Hepatitis C, achieved SVR
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Old 04-07-2020, 10:19 AM #8
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Hi tnthomas, Your situation is kind of same as mine. When I first went in 2004 I was having a ton of problems I,e headaches,sore muscles.numb feet, lost a lot of weight could not eat. After test I too had dx hep c and cryoglobulinemia, I too started riv/peg and had to stop around shot 4 or 5 due to drug induced vasculitis. After stopping treatment the vasculitis went away and after my year on treatment hep c and cryoglobulinemia was gone. My P/N did not go away, but at that time I cleared till around 11/2018 I had only had sore and numb feet. Then from 11/2018 till now it has got worse.
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Old 04-15-2020, 03:36 AM #9
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Quote:
Originally Posted by dcd2103 View Post
What’s the cause of your SFN?

I don’t use Alpha Lipoic Acid. If you have amalgam fillings ALA is a chelating agent and can be dangerous.

Only thing that seems to help me is IVIG
Can you explain further please?
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Old 04-15-2020, 10:56 AM #10
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Not sure? Were you asking a question of my post? or someones reply to mine.
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