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01-23-2021, 06:00 PM | #1 | ||
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Just hearing a favorite MD on my radio and a woman called in about the severe P.N. and he asked her all the questions, did you do nerve systems etc and she said yes, and doc had given her gabapentin which she didn't like and got off it and then he gave her cymbalta and said "this is an anti depressant and got off it.
My doc said "get off most of the carbs/sugars and that will start with the changes needed. The woman was clueless as she didn't hear any of this info from her MD. When asked what A1C number is she said 5.9, the doc said too high. You people know all this but good repeating. |
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01-24-2021, 04:41 PM | #2 | |||
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Just thought I'd chime in a little on my experience with a 7 1/2 year battle with idiopathic full body neuropathy. While I still don't know the exact underlying cause, I do know that with 100% certainty what goes in my mouth directly affects the severity of my symptoms.
I think there's little doubt at this point that my body is producing histamine in response to whatever it is I eat that it finds offensive now, and isolating the "whatever it is" has been a great challenge, but I've dramatically improved my symptoms avoiding the things I know are involved now. I've had a full allergy work-up, and the only thing of interest that showed up was a high histamine level in my blood. I don't have any food allergies that resulted in an IgE response. The fact that my problem is food-related is also why my symptoms worsened during the day, and I always felt best in the morning (and when I fasted). While I'm still symptomatic, I'm at least relieved that I have some control over the severity of my symptoms. janie |
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01-25-2021, 02:28 PM | #3 | ||
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I'm realizing more and more being constipation keeps neuropathy going. I've worked on constipation all my life and at 82 and getting older and now dealing with neuropathy from hip replacement surgery and other stuff...cleaning up the diet, eating more bran (oat bran added to soups) and now with the addition of a stool softener when I go to bed, the neuropathy is so much less.
Constipation, Distended stomach, Numbness or tingling and Numbness or tingling: Common Related Medical Conditions Think about this if neuropathy is stubborn, clean out the colon. Get rid of lots of sugars too, but the stool softener is just what might be needed... |
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01-26-2021, 02:01 AM | #4 | ||
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I would like to hear more of your story and what foods you feel help you and what foods make things worse for you. This is a thread about diet and PN after all and your experience and knowledge will be most welcome. Have you tried intermittent fasting? Atty |
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02-15-2021, 01:03 AM | #5 | |||
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Hi Atty,
Sorry for the delay in responding. I thought I had notifications turned on for this thread, but didn't. I've really, really struggled with figuring what foods are my triggers...and figuring it out by trial and error.. But to answer your intermittent fasting question, I kind of do that by default. I've never been a breakfast person, so not eating for 16 hours isn't hard. I try to avoid or minimize all of the following: - overly salty food - any aged, smoked or processed meat - leftover meat - canned food - non-homecooked food Basically, I try to eat fresh food (low in histamine) with minimal salt. That's what helps me most, and I have no explanation for why salt may be involved. One thing that is really abnormal about me that I apparently just got used to is that I will often get congested after I eat something savory. This was huge clue that histamine was at play, but I completely missed it. Of course the ramp of neuro systems followed. Because histamine is inflammatory, I've been a flaming ball of fire for 7 1/2 years. A sinister side effect of it (I think and hope) is that I've developed inflammatory nodules in my lungs that are growing. I've had a biopsy that came back "non-diagnostic," which means there was no obvious sign of cancer, but it still could be. (My dad died of lung cancer at 42 which is a complicating piece of data.) The thoracic surgeon wanted to go in right away and remove the largest of the nodules so a better pathology could be done on it, but I've begged for another 3 months so I can continue doing everything I can to reduce the inflammation and maybe get the nodules to start decreasing in size. I feel so much better, that I'm hoping that's happening. We'll find out when I have next CT scan. Needless to say, I'm very motivated to watch what I eat, take ever anti-inflammatory supplement I can think of, exercise religiously (which I hadn't been doing), and also take digestive enzymes before I eat anything because maybe, just maybe, it will help. All I can do is cross my fingers on that. Quote:
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"Thanks for this!" says: | Atticus (02-17-2021) |
02-15-2021, 12:37 PM | #6 | |||
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i wouldnt recommend waiting to get the biopsy, it may give you some peace of mind and if it does turn out to be cancer, the sooner you address it the better. |
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02-17-2021, 02:57 AM | #7 | ||
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Thanks for your reply. I wasn't aware of the link between histamine and PN. I have found the links below online which may be of benefit to you and other readers. But I can't help thinking the advice from echoes long ago is the most important. Sorry for my ignorance here and the first link below shows the sheer complexity of histamine in the body, but can't anti histamines help you? https://bpspubs.onlinelibrary.wiley....nerve%20injury. Antihistamines for Nerve Pain? Diamine Oxidase (DAO): Benefits, Dosage, and Safety I wish you well and keep us posted of your progress. Atty |
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"Thanks for this!" says: | echoes long ago (02-17-2021) |
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