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Old 07-21-2020, 04:01 AM #1
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Have you ever had a coeliac screen ? might be worth it if you haven’t.
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Old 07-21-2020, 07:19 AM #2
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Quote:
Originally Posted by Silence56 View Post
Have you ever had a coeliac screen ? might be worth it if you haven’t.
I have been tested and it was negative.
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Old 08-04-2020, 06:25 AM #3
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I recently also became aware that I have Erythromelalgia, which shows up in my face and upper arms. I think it must be somewhat related, perhaps with the same root cause as my SFN, as that had an unusual presentation as well, in my hands and arms rather than lower body.
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Old 08-04-2020, 07:23 PM #4
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Questions, this information about erythromelalgia may help you.

Erythromelalgia - NORD (National Organization for Rare Disorders)
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Old 08-09-2020, 06:13 AM #5
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Thank you for the link, the information is very helpful.

I also have Livedo Reticularis, and combined with the Erythromelalgia I guess whatever underlying autoimmune issue I have has to be neurovascular, which maybe narrows it down a bit but I don't know.

I've also been experiencing higher heart rates lately, even when resting (low 100s), and pretty bad insomnia.

It's been a few years since I had tests so I'm currently trying to go to the doctor and at least get a few blood tests done, confirm rule outs at least. But I currently live in a country where I do not speak the language so I'm trying to figure as much out by myself as I can.
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Old 08-09-2020, 01:16 PM #6
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Restorative Sleep is vital to healing and you say you have insomnia. Do you live in a country where homeopathics are used. They are used worldwide and there are a number used for insomnia....Do a search...
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Old 08-16-2020, 11:33 AM #7
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Hi,

This sounds so much like B12 deficiency. We have the same symptoms. I have developed SFN almost 3 weeks ago and now it is spreading everywhere. I am starting to get b12 shots tomorrow. Have you checked your levels?
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