[Klebk123]

Hello alltogetger,

in the last few months i have experienced a load of symptoms and no doctor seems to be able to diagnose me so far.

Four months ago i had an UTI which was successfully treated with antibiotics (cerufoxin). A week later i woke up and my vision was blurry in both eyes and my skin was slightly numb all over my body (no normal patch left). In the next weeks i developed intense night sweats, tinnitus, false hot/cold sensations, muscle twitching, balance issues, motor issues and a few more. I went to ER and they did blood tests, MRT of head and spine, which all came back normal. My LP showed slightly elevated white cell levels (70cells) but nothing more, not bands. Four weeks later a second tests was done and the cell level was down to zero. B12 was not tested low also. I did Antibody tests for NMO, Lima test, which came back negative too. After about 2 months almost all the above mentioned symptoms faded away. Now i am just left with my blurry vision (which stays the same) and slowly increasing numbness all over my body. I feel like i get kind of a rush every few days and then it stays at this level. My skin feels very smooth, as if it is not getting moisturized correctly anymore. Muscles seem to weaken a bit too. I do not have any pain or pins and needles, just sensory numbness everywhere. It also feels like my bladder is numb too since i need to go to the toilet way less frequent than before.
aim getting a skin biopsy but the results will come back in 3-4 months...

Did anyone experience this before? Im not sure it its just the skin, kind of feels like numb from the "inside" too but its hard to explain.
I am not a heavy drinker or diabetic. I do not drink anymore at all since 4 months but the symptoms still slowly increase but with a pace where i think everything will be fully numb in a few months.
No one is able to find a cause or treatment and they kind of just told me to live with it. They said they have never seen a case like mine. Any ideas?

Thank you for your help

[kiwi33]

Hi Klebk123

Welcome to NeuroTalk .

I am sorry to read about your symptoms; they sound very concerning.

I hope that their cause(s) gets sorted out soon.

All the best.

[Unbitten]

Hi, I kind of have similar symptoms after rabies vaccine a couple of weeks ago. How are you now? Did you get better?

[agate]

Hi Klebk123,
If you're still here, I'm sorry you have these unexplained symptoms. It sounds as if some doctors have been trying to find out what is going on with you--but not coming up with any answers. You don't mention what kinds of doctors you've been to but I hope they are competent ones.

You do know how to check into a doctor's background online, I hope. The information can be very helpful.

Hope you'll get some answers soon.

[Wren]

[QUOTE=agate;
You do know how to check into a doctor's background online, I hope. The information can be very helpful.
[/QUOTE]

Agate, please, when you have a spare minute, let me know how to check on a doctor's background. Many thanks.

[Klebk123]

Hello,

yes im still here. But unfortunately it has not resolved yet. I still get flares every one or two weeks and my skin gets more numb every time. This has been going on for 6 months now. I have been to about ten different docotors since then and no one could find anything. A tropical expert found i had a strangyloides infection at some point and i got treatment for that, but it didnt change the symptoms. I had diabetes checked, borreliosis, cancer, gluten, MS, NMO, and several others, all negative.
I had a low positive ANA titer of 1:80 which could indicate an autoimmune disorder. But to be sure the value is still too low.
Im out of ideas now and just hope it will stop at some time by itself.
If anyone got any ideas im open :-)
And yes i checked for the reputation of the doctors before.l and chose good on. Even went to the well kmown University Hospitals in Aachen and Berlin. No results...

Regards

[agate]

Wren, it is so important to get a competent doctor that spending some time doing a Google search is well worth while. If you enter the doctor's name in the window at the top of the screen, you should bring up any number of Websites where the doctor is listed. Many of them will be the doctor's own Websites--usually in connection with hospitals or clinics he/she is affiliated with.

If you look at those, you can be fairly sure that they've been scrubbed of any negative information but at least you can probably find out a few facts such as the doctor's training and board certification.

Some of the links will be for sites like doximity.com and healthgrades.com. Those are sites where you can often find more information, including patients' ratings and comments.

I read through the comments and pay attention to the ratings. Some of the ratings may be undependable--coming from people with a grudge or from the doctor's personal friends, for instance--but they're a way of getting a general idea of what the doctor is like.

Klebk, I didn't realize that you weren't in the US. I'm not informed on how to find information about doctors where you are but my guess is that there are ways. You just have to remember that not everything on the Internet is true or valid.

I've sometimes called a doctor's office for the basic information--where a doctor was trained and when, whether board-certified. The doctors' offices were always quite willing to provide the information.

[dcd2103]

This sounds like small fiber neuropathy. It’s often triggered by an infection. Google it **

[Wholebodynumbness?]

I am in an indetical situation as you. any luck? How are you