Hi LeedsLad,

I have somewhat a similar story to yours. My issues also started a couple of months after a viral infection.

Sensory changes in both feet, and in legs. Twitching in legs and all-over. Some stiffness in calves. Done a bunch of tests including MRI, Spinal tap, nerve conduction and nothing is found except the twitches that was noticed on the EMG.

**

Br John

Hi there

Hopefully it's a similar prognosis to what mine is then. I do find month-by-month, the symptoms get less and less and especially the last week for me I have found have been a lot of good days. I still get the odd prickly feeling/sensations/twitching, but it's much reduced. I've said that now, so I am sure next week will be horrible

This is all without Gabapentin too.

It's pretty much approx 7-months since this all started and my neuro did say it could take some time to fully resolve/peter out and did mention things like post viral fatigue which can sometimes take a long time to get over, if at all.

When the report from our last session is available, happy to post it up in here.

Another thing I forgot to add:

I was trying to show off my new found knowledge on all things nerve-related to the Dr and asked him whether peripheral nerves can regenerate (knowing they can lol) and he said 'slowly' but in your case, I don't believe there is any nerve damage. It is more a functional issue as opposed to a structural issue.

Does anyone know if there have been similar prognosis' on here for people as most threads I tend to read are all around actual nerve damage as opposed to what this seems to be?

The antibody tests BTW were: voltage gated potassium channel antibodies
(VGKC, LGI1 nad CASPR2).