FAQ/Help |
Calendar |
Search |
Today's Posts |
11-21-2020, 01:51 PM | #13 | ||
|
|||
Junior Member
|
Quote:
I left you a visitor message. I am pretty much the same at the moment. I’ve had three days of very mild symptoms (2/10) but not counting any chickens as I know it’s still there as I get sporadic tingling or twitching. My neuro suspected this was post viral but as I said in the original post, I took two courses of different antibiotics which like yours could have triggered something. It is idiopathic really as they’ll never be able to say what the cause was. My neuro said exactly the same re it not being damage as symptoms were too transient and all over. He said it’s a functional issue affecting mainly small fibres but also some large (twitching). I also had the thermal test for small fibre which was negative so he didn’t see any reason to do a biopsy. I took gabapentin for two months and stopped a week ago and it has made little difference to symptoms which is good in a way as I’m glad they didn’t seem to be masking anything. It’s going to be ten months for me soon and it had definitely got more tolerable, and I’m sure there’s an element of me becoming slightly used to it. Touch wood, it doesn’t take over my life like it used to in the first six months. Then, I’d struggle to eat, sleep or even focus on anything else. I’m quite a skeptic, but I do believe positivity and trying to block out the noise from this does help. I just went on holiday recently and aside from one two hour spell, it didn’t affect me at all. I hold onto the hope from my last neuros letter that he expects it to resolve and there isn’t structural damage to the nerves. Let’s see! Happy to discuss further with you in any case as sometimes I know it can be difficult to get support when people don’t understand what’s happening. My girlfriend is sick to the back teeth of neuropathy and nerve health lol. Also don’t fret about the tests. They are on a scale of 1-10 about a 1. They don’t exacerbate symptoms nor does it hurt. I had some mild aching after the first EMG and took some ibuprofen but that was it. The second time round I was actually looking forward to it to see whether anything had changed. I’m terrible with needles and all that stuff too so if I can do it you’ll be fine Thé neuro you’re seeing is excellent. The one I sought a second opinion from was Dr Hadi Manji, who to be honest told me what the first one had, albeit it in a lot more detail. Hope this helps a little |
||
Reply With Quote |
"Thanks for this!" says: | Atticus (11-22-2020) |
|
|
Similar Threads | ||||
Thread | Forum | |||
25 year old male. very scared. | Peripheral Neuropathy | |||
Post Viral Neuropathy? Please help | Peripheral Neuropathy | |||
Post Viral Neuropathy? Please help | General Health Conditions & Rare Disorders | |||
SCARED car accident 8 months post op ACDF | Spinal Disorders & Back Pain | |||
4.5 months Post-HiCy : A TRUE Thanksgiving Story | Multiple Sclerosis |