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Old 02-01-2021, 07:47 AM #61
LeedsLad84 LeedsLad84 is offline
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Originally Posted by Atticus View Post
Hey Leeds Lad,

Thanks for the update, often wondered how you were getting on. Your description of your symptoms and treatment has been comprehensive and very useful. Thanks for sharing.
My symptoms started early January 20, kind of peaked in March /April 20 and subsided in May 20. I'm still not 100%. I have insignificant numb toes and my legs and arms can ache like I've done v heavy exercise instead of light from time to time. And my hands can later feel pain from carrying a heavy shopping bag etc
I've had one nerve conduction test last summer that was negative a MRI scan of brain and neck, in the Autumn, negative, a telephone appointment with a Neurologist and a Covid cancelled face to face appointment on January 18th 2021 with no new appointment allocated. Although never diagnosed I believe I had/have alcohol induced PN and I stopped drinking alcohol on February 2nd 2020 with a couple of lapses. I have taken no medication.
I have pursued a whole food plant based diet... orthorexia nervosa ... an obsession with healthy eating, but it has been the cessation of alcohol that has undoubtedly helped me most.

Are you taking any meds currently? Which meds do you feel have helped you and which ones haven't?

Atty
Hey Atty

I do think there is something to be said for low inflammatory diets- I think they will make some sort of difference, so glad the alcohol absence has helped you.

As you'll know, I was prescribed Gabapentin most recently and I took that for about 2 months before stopping. No meds I ever took made a discernible impression on my symptoms and I am fairly sure they just did what they want regardless. I am wondering whether they were less effective as I didn't have any of the typical nerve pain sensations or anything like burning etc.

In terms of other stuff, I was on all the supplements at the start (I think I listed them out previously) and then just naturally stopped as they all ran out - I am not sure whether they did make a difference or not. Maybe it helped with the position I am in now, or perhaps that would have happened any way. In either case, I think marginal gains in any case would be helpful.

At the moment, the only supplements I take are Omega 3 fish oil, Magnesium, R Lipoic Acid (mainly as I have them left, but will stop after) and B12.

I think anything that promotes healing and/or regeneration is worth trying, as are things like low GI diets, yoga/stretching and acupuncture. I did it all

P.S. I tend to get muscle aches and sometimes mild/dull shooting pains in my hands and elbows. I have no idea whether it's related to this thing, or perhaps repetitive strain from working at a desk for so many hours, but I've found Magnesium gel application directly to those areas has helped!
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Old 02-02-2021, 10:11 AM #62
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Of course, after I posted this, I have had some flare ups for the first time in 3 weeks. Typical lol.

Mainly tingling/prickling/twitching.

Interestingly, my neuro in his latest letter also described this ailment as sensory mononeuritis.
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Old 02-04-2021, 01:17 PM #63
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Of course, after I posted this, I have had some flare ups for the first time in 3 weeks. Typical lol.

Mainly tingling/prickling/twitching.

Interestingly, my neuro in his latest letter also described this ailment as sensory mononeuritis.
Mononeuritis means damage tu multiple nerves. Sensory mononeuritis is damage to multiple sensory nerves. Small fiber nerves are sensory nerves so Sensory Mononeuritis could be the same as NLD SFN. Wonder what is next for us friend.
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Old 02-04-2021, 06:11 PM #64
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mononeuritis is inflammation, and damage of a single nerve.

mononeuritis multiplex would be damage to nerves in seperate limited areas
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Old 02-05-2021, 05:31 AM #65
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mononeuritis is inflammation, and damage of a single nerve.

mononeuritis multiplex would be damage to nerves in seperate limited areas

Interesting. I wouldn't think irritation of a single nerve would give me the symptoms I've had all over the body though?
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Old 02-05-2021, 02:37 PM #66
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That's because you, me and all of the others here with full body symptoms don't have "Mononeuritis" of any kind. We all have some form of neuropathy, unknown cause. It all began after a stressful event which compromised our physiolgy, be it either an illness or injury (injury in my case). We can all hope things will stay the same and not progress, I am hoping for that rather than expecting to heal. I wish there was someone on this forum like us who has full body sensory annoyances and is fine in every other aspect to tell us about it long term. Suspense is killing me.
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Old 02-06-2021, 02:19 AM #67
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I have a simple question.

Does leg elevation help Peripheral Neuropathy?
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Old 02-07-2021, 08:47 AM #68
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I have a simple question.

Does leg elevation help Peripheral Neuropathy?
Hasn't ever done a thing for me....
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Old 03-08-2021, 12:08 PM #69
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Hi guys

Nearly a month now with 0-1/10 symptoms again.

I think I finally feel confident enough to say where in the end game and it's becoming less and less bothersome.

Eventually I expect it will fizzle out entirely like it is doing so now.

I know how much past/old threads were of use to me on this forum during the darker days so I will be back in several months just to confirm it has actually gone and give the readers some peace of mind.

But yeah, I hope from reading my story and the information provided that it does show nerves can heal, albeit very slowly! It has basically taken me a year approximately post-virus for things to get back to normal so if you're going through the same or have some sort of acute nerve issue, then hopefully this post has helped you in some way.

Take care
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Old 03-08-2021, 08:42 PM #70
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Thanks very much for your detailed posts while you've been dealing with your neuropathy. It has been helpful for me even though mine has a different cause. Here's hoping that you'll continue to recover even more. You take care there too.
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