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Old 03-13-2022, 11:28 AM #11
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Welcome Claudbaker.
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Old 03-13-2022, 01:30 PM #12
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Welcome to MidwestWife, Claudbaker, and Wholebodynumbness?


Claudbaker, you'll probably be glad you got the French drain. The apartment building I live in installed one many years ago and it's still working well at removing the standing water that was a constant problem in the north area of the grounds.

I'd always be in favor of not moving just because moving is ALWAYS far more of a bother than a person expects, but I have had no experience with mold issues--though a neighbor's apartment was found to have mold, and she stayed right where she was while putting up with the considerable nuisance of having HEPA filters and other inconveniences for a while.
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Old 03-23-2022, 08:30 PM #13
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Hi Wholebodynumbness, ,I can empathize with everything you are saying and I am so sorry you are going through this!
I just saw your post but it is late here in the Midwest and I need to go to bed. I want to do justice to my reply to you so please give me until tomorrow and I will respond.
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Old 03-27-2022, 11:40 AM #14
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Quote:
Originally Posted by Wholebodynumbness? View Post
Hi! Thank you for sharing it I truly appreciate it! I am dealing with a loss of sensory sensation throughout my whole body. Numbness all over not one patch can i feel more than another. Ive been in hospitals. 100 doctors and so over 90 blood draws in 1 and half years. With no help. My brain mri did show a lesion but they are very confident its not ms and i had a spinal tap as well. So i have been told its all in my head etc etc. Ive lost the ability to cry as i have too much. Severe depression and hopelessness. My symptoms have also gotten worse with most medication and i have a hard time even tolerating binders and supplements. My urine mycotoxin test can back present for The Trichothecene toxin and Gliotoxin. My functional doc wants me to take cholestyramine to bind the toxins but i couldn't even handle bentonite clay my whole stomach got swollen and i had to get a ct scan just from that. Have you had any sympotoms of full body numbness or inflammation? For example my nose would swell up very bad for a week until my body can fix it. Even things such as gential inflammation as well as genetial numbness which has been constant for almost 2 years... Im in desperate need very worried if i can make it. Im not sure if its caused by the mycotoxins but im being told i need to get those out my body. Can you tell me what treatment you have done and how it has gone for you. Are you now able to feel your body again? -Thank you so much
Dear Wholebodynumbness,

My heart goes out to you for your struggle; I know it myself too well. Yes, I know the whole body numb feeling, while at the same time retaining the sensations of pain and burning at different times. This has included the genital area as well as burning/numbness/altered sensation in my palms and tongue/mouth. I know the depression can be profound and have experienced it myself. Many “moldies” report depression so severe there is often a desire to die, even if there is no suicidal ideation or plan to carry out such an act. MRI’s of mold damaged brains can show up black and pitted, compared to a healthy brain image and this is not surprising since the toxins so easily cross the blood-brain barrier. The images of brain damaged areas that control emotions, cognition, and whole body functioning reflects the depression and catastrophic health damage that mold can cause.

Finding the underlying cause of your symptoms is a huge victory. And, yes, I have no doubt the presence of these mycotoxins is the cause. The trichothecene (Fusarium and Stachybotrys are sources of this – from water damaged buildings as well as grains like wheat, corn and oats) and gliotoxin (Aspergillus and Penicillium – very common- often from water damaged buildings) are neurotoxins and everything you shared fits.

Prior to diagnosis in May of 2019, I thought I was dying. We moved into a ranch home in 1999 that we now know had some penicillium and aspergillus mold in the crawl space due to standing water from faulty sump pumps. I experienced severe depression, gastrointestinal dysfunction, feet burning/numbness yet still with pain that advanced up my legs, then appeared in my palms and progressed up my arms, skin changes (tight, like a sunburn almost), brain fog to the point I thought I would lose my job, crushing fatigue, weakness, heart palpitations, maddening insomnia, dizziness, constantly feeling car sick, many food and chemical sensitivities and the list went on and on. My symptoms continually got worse and I was diagnosed in May of 2019.

In June of 2019 we had our home professionally remediated with the “gold standard”. However, my husband and I had just become too sick and hyper-sensitized. Many moldy people are unable to stay in the environment that made them as sick as we became, even when remediation is done correctly, as ours was. We decided to build a new home. It was a huge undertaking but we moved in in November 2021. We were in for a week, started feeling better, but had a setback due to a new but moldy item brought into the house. The item was quickly removed but I am still experiencing reactions to the residual toxins it left behind.

What has healed: many of my gi tract symptoms are gone. I do avoid gluten and dairy intake is minimal (the exceptions are raw cheese and milk from grass-fed cows). Please consider refraining from all grains if possible; they are loaded with mold. A fair number of chemical sensitivities have improved although in our house there are no scented body or household cleaning items. I highly recommend ditching all products with a fragrance. Your body cannot tolerate the chemical exposure. I can now tolerate the occasional, short-lived fragrance exposure (like in the grocery store or other). The constant state of feeling car sick is mostly gone. I rarely experience dizziness or heart palpitations anymore. Tinnitus has subsided. There is some improvement in energy levels. Depression has lessened and I never took any anti-depressants.

What I am still struggling with: neuropathy. It has improved somewhat as I can now walk about a half of a mile when, at my worst prior to diagnosis, I could only walk about 30 yards or so. Mouth and palms still burn but less so. It is said that nerves are the last things to heal – if they ever do. But I am grateful for the tiny improvements I am seeing, even if they are measured only in micrometers. I became unmasked to mold and can now smell it pretty much everywhere and now my mold exposures are often first manifested by nausea. My body is saying get out. I will probably always feel better outside. Inflammation of brain and body will probably be a long battle.

What has helped: I cannot overstate this – mold avoidance. You have to get out of it. Home, school, office, wherever your mold exposure is coming from, the body cannot heal while still in it. I do take supplements because the toxins have caused so much damage. Magnesium first and foremost. Glutathione and calcium d-glucarate, which help the liver detox. I get amino acid injections to reduce overall inflammation and calm the immune system. These have probably kept me functioning through this whole ordeal. That said though, you cannot “out supplement” your exposure. You must identify where your exposure is coming from and address it. There is nothing cheap, fast or easy about any of this. We lost a home we loved. We threw away probably 90% of our belongings due to contamination. We lost our health and have spent an enormous amount of money over the years on supplements, doctors, and tests that never truly helped. There is no treatment that compares to a less-moldy environment. I would love to say mold “free” but it really is everywhere. Please consider looking into the 2015 movie “Moldy” and/or looking up website paradigmchange.me (search Erik Johnson)

This is a hard journey but please remember there is always hope!
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Old 03-29-2022, 12:07 AM #15
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Default Cholestyramine treatment for mold exposure induced neuropathy

hi I appreciate the info! Do you remember what the main treatment was to get rid of the Mold? Im being told to take Cholestyramine to bind the toxins and see if my symptoms get better. Have you heard of this treatment option and what would you say was the x factor in your healing? Thank you
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Old 03-29-2022, 07:16 PM #16
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Hi, yes, I took cholestyramine. I’m not sure how much it helped because we were still in the moldy house. I should probably try it again. It is relatively inexpensive unless you have a pharmacy compound it for you, which eliminates the junk in it but makes it quite costly. The most helpful thing you can do is avoid the mold. Get out of it; the body cannot heal with ongoing exposure. If we had not left our moldy home I would probably be in a wheelchair by now, or dead.
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Old 03-29-2022, 07:19 PM #17
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Meant to add, correct remediation is crucial. A poor job is a disaster. Please go to website momsaware.org. Here you will find information with links for how to select a reputable remediation company.
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Old 07-06-2022, 08:40 PM #18
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Default can you please update?

May I ask how are you doing with your recovery, specifically your peripheral neuropathy, since you remediated your environment of mold and began detoxifying, etc? I am facing a similar situation with high levels of OTA just discovered in my body, and very painful peripheral neuropathy which developed last year. I am now seeing a very good naturopath who is helping me detox and support my immune system, but am terrified about my neuropathy in the long-term.
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Old 07-07-2022, 11:12 AM #19
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Welcome bryanhealth.
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Old 08-04-2022, 06:14 PM #20
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Hi,
Thank you very much!!
When I was little and growing up my family lived in a series of bad/moldy homes.
I'm 19 now and have most of the problems you stated above, I never thought mold could be the cause of my neuropathy!
My mom has had severe health problems because of the black mold we were exposed to, so I always tried to downplay my issues, but it's really scary!!
I was wondering how you were doing? And if you have found anyway to relieve the pain?
Thank you again I'll be praying for you!!

P.S
I agree, you would not believe how many homeowners/management companies have done anything to keep us quiet when it comes to mold!!
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