Home Menu

Site Navigation




advertisement
NeuroTalk Support Groups > > >

Benfotiamine

Reply
Page 1 of 2 1 2
 
Thread Tools Display Modes
Old 08-29-2020, 05:25 PM #1
tnthomas's Avatar
tnthomas tnthomas is offline
Member
  
Join Date: Oct 2011
Location: High Desert, Calif.
Posts: 160
10 yr Member
tnthomas tnthomas is offline
Member
tnthomas's Avatar
 
Join Date: Oct 2011
Location: High Desert, Calif.
Posts: 160
10 yr Member
Default Benfotiamine
Has anyone tried Benfotiamine for their PN?

Quote:
Benfotiamine is a synthetic S-acyl derivative of thiamine that sold as a medication or dietary supplement to treat diabetic neuropathy.
After being diagnosed, I tried the B12 sublingual for about a year. Blood labs confirmed the B12 regimen in fact raised the level in my body. But, there was no noticeable improvement. Later, a P.A. told me the absolute cure for my numbness would be to take B6. However, Google-search revealed that B6 could actually make the PN worse.

I am willing to experiment further with supplements, just getting a little tired of throwing away $$ on ones that don't work.
__________________
3/1/2011- diagnosed with Peripheral Neuropathy
April 2012- Treated for Hepatitis C, achieved SVR
tnthomas is offline   Reply With QuoteReply With Quote

advertisement
Old 08-29-2020, 05:44 PM #2
caroline2 caroline2 is offline
N/A
  
Join Date: May 2015
Location: Santa Monica, CA
Posts: 3,313
8 yr Member
caroline2 caroline2 is offline
N/A
 
Join Date: May 2015
Location: Santa Monica, CA
Posts: 3,313
8 yr Member
Default
I have used this product and not right now...why I'm not sure. I've fallen off taking some of my supplements in the last couple yrs. BUT, like everything we try and use, we are all Unique and Different and what might work for me, may not for you and vice versa....and I find best results with what I've been taking and will have to look at the Thiamine product again. thanks.
caroline2 is offline   Reply With QuoteReply With Quote
Old 08-29-2020, 07:04 PM #3
beifeng beifeng is offline
Newly Joined
  
Join Date: Aug 2020
Posts: 4
3 yr Member
beifeng beifeng is offline
Newly Joined
 
Join Date: Aug 2020
Posts: 4
3 yr Member
Default
Thiamine in large quantities can be very therapeutic for all kinds of neuropathies. It's hard to say if it would work for you, but it's very safe to try. Benfotiamine is good; some would argue that Allithiamine or Lipothiamine are better because they cross the blood-brain barrier, but I've seen success stories from all of these variants.
beifeng is offline   Reply With QuoteReply With Quote
Old 08-30-2020, 12:34 PM #4
Dexter454 Dexter454 is offline
Junior Member
  
Join Date: Dec 2019
Posts: 55
3 yr Member
Dexter454 Dexter454 is offline
Junior Member
 
Join Date: Dec 2019
Posts: 55
3 yr Member
Default
Yes, I too was thinking on trying the benfotiamine also to see if I can get any benefit . I have also read online about the B-6 and was a little concerned if it can cause more damage. Right now I eat a multi vitamin with B-6 in it at 3MG at 150% DV but I think that is a low dose of it? not sure.
Dexter454 is offline   Reply With QuoteReply With Quote
Old 08-30-2020, 12:47 PM #5
Kitt Kitt is offline
Grand Magnate
  
Join Date: Aug 2006
Posts: 4,427
15 yr Member
Kitt Kitt is offline
Grand Magnate
 
Join Date: Aug 2006
Posts: 4,427
15 yr Member
Default
Too much Vitamin B6 can cause problems with your nerves and other side effects.

Kitt
Kitt is offline   Reply With QuoteReply With Quote
Old 08-30-2020, 01:04 PM #6
tnthomas's Avatar
tnthomas tnthomas is offline
Member
  
Join Date: Oct 2011
Location: High Desert, Calif.
Posts: 160
10 yr Member
tnthomas tnthomas is offline
Member
tnthomas's Avatar
 
Join Date: Oct 2011
Location: High Desert, Calif.
Posts: 160
10 yr Member
Default
I should start a poll, my PN is primarily numbness, with just occasional nerve lightening bolts. A lot of people suffer mainly from the hot pricks and jabs and other sensory anomalies. I haven't seen much talk, but wonder if anybody ever experiences a reversal of the numbness?
__________________
3/1/2011- diagnosed with Peripheral Neuropathy
April 2012- Treated for Hepatitis C, achieved SVR
tnthomas is offline   Reply With QuoteReply With Quote
Old 08-30-2020, 01:35 PM #7
caroline2 caroline2 is offline
N/A
  
Join Date: May 2015
Location: Santa Monica, CA
Posts: 3,313
8 yr Member
caroline2 caroline2 is offline
N/A
 
Join Date: May 2015
Location: Santa Monica, CA
Posts: 3,313
8 yr Member
Default
I take B6 in the P5P form....good to do research on these and don't just buy one opinion. I take 50mg nightly and this also helps me get my 8-10 hrs of good REM healing sleep.

What Are the Health Benefits of P5P? | Livestrong.com

OP: Have you considered working with Inosine, I have talked about how it helps my burn/tingle issues.
caroline2 is offline   Reply With QuoteReply With Quote
Old 08-30-2020, 01:43 PM #8
Dexter454 Dexter454 is offline
Junior Member
  
Join Date: Dec 2019
Posts: 55
3 yr Member
Dexter454 Dexter454 is offline
Junior Member
 
Join Date: Dec 2019
Posts: 55
3 yr Member
Default
Mine seems to have progressed with numbness in my feet and calves mostly but have never any type of reversal pretty much steady and slowly growing more numb. Most of my stuff that is bothersome in in the order of sensory problems is with skin burning in a lot of places, muscle movement. Not any jolts or hot pricks but I sure do burn.
Dexter454 is offline   Reply With QuoteReply With Quote
Old 09-01-2020, 09:33 PM #9
tnthomas's Avatar
tnthomas tnthomas is offline
Member
  
Join Date: Oct 2011
Location: High Desert, Calif.
Posts: 160
10 yr Member
tnthomas tnthomas is offline
Member
tnthomas's Avatar
 
Join Date: Oct 2011
Location: High Desert, Calif.
Posts: 160
10 yr Member
Default
Quote:
Originally Posted by caroline2 View Post

OP: Have you considered working with Inosine, I have talked about how it helps my burn/tingle issues.
I just bought some L-Theanine 250mg (Extra Strength) with Inositol , hoping it will help.
__________________
3/1/2011- diagnosed with Peripheral Neuropathy
April 2012- Treated for Hepatitis C, achieved SVR
tnthomas is offline   Reply With QuoteReply With Quote
Old 09-08-2020, 10:37 PM #10
tnthomas's Avatar
tnthomas tnthomas is offline
Member
  
Join Date: Oct 2011
Location: High Desert, Calif.
Posts: 160
10 yr Member
tnthomas tnthomas is offline
Member
tnthomas's Avatar
 
Join Date: Oct 2011
Location: High Desert, Calif.
Posts: 160
10 yr Member
Default
I ordered some Benfotiamine from Amazon,

Quote:
Benfotiamine has been studied in laboratory models of diabetic retinopathy, neuropathy, and nephropathy. As of 2015 there had been one clinical study of benfotiamine in diabetic nephropathy. Benfotiamine - Wikipedia
__________________
3/1/2011- diagnosed with Peripheral Neuropathy
April 2012- Treated for Hepatitis C, achieved SVR
tnthomas is offline   Reply With QuoteReply With Quote
Reply
Page 1 of 2 1 2

Tags
b12, benfotiamine, google-search, revealed, told

« Previous Thread | Next Thread »
Thread Tools
Display Modes
Linear Mode Linear Mode

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
Benfotiamine groucho Peripheral Neuropathy 2 10-21-2015 09:08 AM
benfotiamine Andrew11 Vitamins, Nutrients, Herbs and Supplements 0 02-23-2013 05:34 PM
benfotiamine. Andrew11 Vitamins, Nutrients, Herbs and Supplements 1 01-04-2013 12:38 AM
Benfotiamine Andrew11 Vitamins, Nutrients, Herbs and Supplements 3 11-13-2012 08:01 AM
Benfotiamine Mark._. Peripheral Neuropathy 3 09-18-2007 08:58 AM


All times are GMT -5. The time now is 06:00 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

All posts copyright their original authors.

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.

Always consult your doctor before trying anything you read here.

Home