New Diagnosed SFN with Full Body Allodynia Help!!!!

shondav1 · 10-21-2020, 06:48 PM

Quote:

Originally Posted by JKPHOTO

FWIW. My doctor say to be careful with using too much Lidocaine as it can adversely effect the heart rhythms.

JKPHOTO

Thanks for the info that's what I was thinking could using to much cause harm. I only use it sparingly.

shondav1 · 10-21-2020, 06:49 PM

Quote:

Originally Posted by mhw69

Try low dose naltrexone.

Thanks I'll look into it.

shondav1 · 10-21-2020, 06:51 PM

Quote:

Originally Posted by gnnmi

Recently I developed similar symptoms and was going crazy. A naturopath gave me a shot with B vitamins and within a day the allodynia had gone away. I already knew I have autoimmune pernicious anemia and get a shot of B12 once a month, but the combination of B vitamins may have been the ticket. He assured me I would feel better but I did not believe him. Worth a shot. It was a naturopath who discovered the pernicious anemia after I'd been to many other doctors. Best of luck as it is miserable.

Thanks will definitely ask the doctor about it.

jelinx · 10-22-2020, 01:10 PM

I've used lidocaine creams too with some positive effect. I also use IcyHot ointment which is essentially menthol and methyl salicylate. Some might say it stings. For me I get a tingling icy effect, burning if on sensitive skin. It seems to overwhelm with neuropathy sensations, creating a numbing effect that for me tends to last for a while sometimes even canceling out the bothersome sensations.

christinejarvis2010 · Today, 12:00 AM

Quote:

Originally Posted by shondav1

I have been struggling with neuropathy since March due to nerve impingement in my ankle. In late July out of no where 20 minutes after taking a shower was in so much pain like I had been pelted with rocks. I was in so much pain and anything that touched my body caused more pain. Finally talked to the DR. via phone mid Aug. He said I have SFN with Allodynia and prescribed gabapentin until I was It has helped some but if I take a shower or bath I'm still in pain. If certain clothes and the bed sheets still hurt. Takes a week or more to calm down

What have worked for you for pain, clothes, bathing, etc.? Any advise welcomed.

I have the same exact problem especially with clothes and sheets. Sadly it's usually 4 to 6 times a day I have to change clothes to feel some relieft and on top of it all I can see the white flakes coming off of my skin and staying on the inside of my clothes. Have you found anything else that works yet? I've been given the gabapentin by my dermatologist and told to use prescribed lidocaine patches and I've done the gabapentin but haven't done the lidocaine patches consistently. I never thought I would find someone else who's going through the exact same thing I am.

glenntaj · Today, 01:42 PM

--for full body small-fiber neuropathy possibilities?

christinejarvis2010 · Today, 03:48 PM

Quote:

Originally Posted by glenntaj

--for full body small-fiber neuropathy possibilities?

I was given a referral to a rheumatologist in the capital of our state since it's only 45 min away from where I live. And the rheumatologist examined me for fibromyalgia or any other rheumatology reason and determined that I didn't have it. And I was also sent to the neurologist and gave me a nerve conduction test which came out normal and showed no findings of peripheral neuropathy or any other emg findings on the test and suggested I begin taking a multivtamin, which I haven't done. But I was sent to a dermatologist about 8 months ago and 6 months ago determined that I had extremely dry skin as well dermatitis. And the next appointment the dryness was getting a little better but I was still having horrible pain. So, the pain she believed was coming from the allodynia and gave me a prescription of gabapentin for 300 mg tablets to take 1 to 3 times a day. as well as giving me lidocaine patches and I've consistently done the gabapentin but not consistently the lidocaine patches as well as keeping up with moisturizing my skin.

christinejarvis2010 · Today, 03:48 PM

What is small fibers neuropathy?

christinejarvis2010 · Today, 03:53 PM

Quote:

Originally Posted by jelinx

I've used lidocaine creams too with some positive effect. I also use IcyHot ointment which is essentially menthol and methyl salicylate. Some might say it stings. For me I get a tingling icy effect, burning if on sensitive skin. It seems to overwhelm with neuropathy sensations, creating a numbing effect that for me tends to last for a while sometimes even canceling out the bothersome sensations.

Does the icy hot really help?

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