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Old 08-31-2020, 09:11 PM #1
shondav1 shondav1 is offline
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Default New Diagnosed SFN with Full Body Allodynia Help!!!!

I have been struggling with neuropathy since March due to nerve impingement in my ankle. In late July out of no where 20 minutes after taking a shower was in so much pain like I had been pelted with rocks. I was in so much pain and anything that touched my body caused more pain. Finally talked to the DR. via phone mid Aug. He said I have SFN with Allodynia and prescribed gabapentin until I was It has helped some but if I take a shower or bath I'm still in pain. If certain clothes and the bed sheets still hurt. Takes a week or more to calm down

What have worked for you for pain, clothes, bathing, etc.? Any advise welcomed.
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Old 08-31-2020, 09:46 PM #2
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From what you wrote, you might want to explore our RSD/CRPS forum also, just to compare. To be sure you have the correct diagnosis and best care..
https://www.neurotalk.org/reflex-sym...rsd-and-crps-/

many years ago there was a lady that had RSD/nerve (mis)diagnosis for her ankle and it was eventually fixed by a chiropractor, an impinged nerve...
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Old 09-01-2020, 09:25 AM #3
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Thanks for the information. I will definitely look into it
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Old 09-03-2020, 07:41 PM #4
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Do you have any suggestions for me as to what to do till I'm able to see a chiropractor
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Old 09-04-2020, 05:38 PM #5
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Hi, I have this on and on too. I have not found a lot that helps 100% but I do use aspercream [roll on] with lidocaine and this helps me somewhat.
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Old 09-09-2020, 11:14 PM #6
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Originally Posted by Dexter454 View Post
Hi, I have this on and on too. I have not found a lot that helps 100% but I do use aspercream [roll on] with lidocaine and this helps me somewhat.


I purchased some a few days ago it helped. Do you use it daily?
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Old 09-11-2020, 05:16 PM #7
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I use it when ever i get a flare, mine usually comes and goes especially if i get stressed for some reason it will bring it on. At first when it started i was using it daily but it has calmed down a bit so i don't have to do a dailly application. They also have some that comes in a little bottle that comes out in a lotion type of application [also aspercream/lidocain] i use it that way too if i have an area on my skin i want to cover a little bit heavier. I am glad it helps you a little. Also after using it a few times on the same part of the body i have also found that making sure you clean the older stuff off before you put the new stuff on helps penetrate the skin better.
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Old 09-15-2020, 07:41 PM #8
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FWIW. My doctor say to be careful with using too much Lidocaine as it can adversely effect the heart rhythms.

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Old 10-10-2020, 10:25 AM #9
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Try low dose naltrexone.
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Old 10-14-2020, 08:07 AM #10
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Recently I developed similar symptoms and was going crazy. A naturopath gave me a shot with B vitamins and within a day the allodynia had gone away. I already knew I have autoimmune pernicious anemia and get a shot of B12 once a month, but the combination of B vitamins may have been the ticket. He assured me I would feel better but I did not believe him. Worth a shot. It was a naturopath who discovered the pernicious anemia after I'd been to many other doctors. Best of luck as it is miserable.
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