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01-19-2021, 04:36 PM | #21 | |||
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Senior Member
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Welcome, Wade Senior!
Congratulations on possibly having found the path to being free of pain. I hope your good luck will hold. Sometimes with pain I find that I have to try first one thing and then another and keep on tinkering until I find something that works.
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Repeal the law of gravity! MS diagnosed 1980. Type 2 diabetes, osteoarthritis, osteopenia. Avonex 2002-2005. Copaxone 6/4/07-5/15/10. Currently: Glatopa (generic Copaxone), 40mg 3 times/week, 12/16/20 - 3/16/24 |
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"Thanks for this!" says: | Kitt (01-19-2021) |
01-26-2021, 09:45 AM | #22 | ||
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Junior Member
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Quote:
and yes, diet.. It has also helped me.. I got a positive test for gluten antibodies, so, I am on a gluten free diet right now , ..So, worth exploring that option as well, including checking for diabetes/prediabeties. Nobody knows, where this will lead to, so keeping fingers crossed and hoping for the best .. This disease requires a lot of self-research and self -introspection that is what I have learned in the last two years |
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02-14-2021, 11:33 AM | #23 | ||
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Junior Member
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the diagnosis and treatment article was great...
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"Thanks for this!" says: | agate (02-14-2021) |
03-24-2021, 10:14 PM | #24 | ||
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Newly Joined
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I've had this peripheral neuropathy for a year now. I'm 61. It was a gradual progression over several months. I've had every test under the sun. My diagnosis is idiopathic. I can't wear socks or shoes. I wear Birkenstock sandals. I can't walk very far. It stems from the balls of my feet, which feel swollen, wooden & numb. I can't walk flat foot anymore. I can't exercise. My feet cramp, burn & vibrate like a cell phone. It's constant all day until I fall asleep at night. It's difficult to take a shower. It's constant physical & mental torture. I take Gabapentin & it only works about 50%. I've tried all the other usual medications. They either don't work or I have a reaction. Until this hit me, I was a hiker. I climbed all 67 4000 footers in New England, several many times. I'm very depressed & sad. The outlook for my life is dismal. I'm glad my kids are grown & on their own. I go to work & suffer, then come home & sit to watch TV until I go to bed. You aren't alone in this.
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"Thanks for this!" says: | Atticus (08-09-2021) |
03-25-2021, 09:20 AM | #25 | ||
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Grand Magnate
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Welcome Mary.Lucie.
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Kitt -------------------------------------------------------------------------------------------------------- "It is what it is." |
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03-28-2021, 04:07 AM | #26 | ||
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Newly Joined
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I did read that you had PN, but have you ever heard of something called Erythromelalgia?
I have severe stenosis in the lumbar and cervical areas at multiple levels but I also have had a couple episodes of Erythromelalgia. My hands and feet got so hot I couldn’t shower (Unless I had a cold water shower) and I couldn’t seem to get them cooled down. It passed after a few days. Just thought I would mention it. It’s something you can look up and see if it makes sense for your situation. I do hope whatever it is that it resolves itself soon. |
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"Thanks for this!" says: | Atticus (08-09-2021) |
08-09-2021, 04:41 PM | #27 | ||
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Newly Joined
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Your experience sounds very similar to mine (mine came on overnight, too). How are you doing now?
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08-10-2021, 01:36 AM | #28 | ||
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Junior Member
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A great support post many thanks to all that have contributed.
I had a letter from my Neurologist yesterday here in the UK and she has used a clinical diagnosis of Peripheral neuropathy. She is sending me for nerve conduction studies but says even if negative the diagnosis is confirmed... |
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"Thanks for this!" says: | Atticus (08-11-2021) |
09-14-2021, 06:13 PM | #29 | ||
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New Member
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When nothing else works try acupuncture. It's helping way more than anything else. Gotta change yer diet. Real radical until symptoms are gone. Then you can decide what's b3st going forward with the food. Be well soon.
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10-01-2021, 02:00 PM | #30 | ||
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Junior Member
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I feel ya. I am just checking back on this site for the first time in months. I had a similar experience in April 2020. Prior to this I had tingling in my heels for a little less than a year. Then after a few days of buzzing deep in my groin, below my genitals, I suddenly had full blown sensations over my entire body. I saw a local neurologist a couple of times over the next 3 months. THen I finally went to a specialist in Jan 2021. I had a skin biopsy, nerve conduction, multiple blood tests. NOTHING could be found. The biopsy showed "axonal" swelling. On exam, my sensation tests, pin prick tests, vibration tests were essentially normal. I feel no weakness. I am 2 years since the prickling in my heels and a good year and a half from the full blown body wide sensations. They put me on nortriptyline and GABAPENTIN (only 300 mg/day). I am maybe slightly worse...the sensations are not more intense, just more regular and simultaneous. I even get sudden irruptions of red patches all over my body. Sometimes my skin turns mottled, or red from pressure that it never did before. Stress definitely makes me notice it more and if I let it, drives me crazy, but I don't think stress makes it occur more...if that makes sense. If I am worse, it is only slightly...it's hard to know. I still get wicked depressed over it. I will see the neurologist for a follow up in Nov 2021...but deep down I believe I will just have to learn to accept this. AT the last appt, the neurologist said it could be SFN, but at a level below what their tests can confirm.
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"Thanks for this!" says: | Atticus (10-04-2021) |
Reply |
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