advertisement
Reply
 
Thread Tools Display Modes
Old 02-02-2021, 08:30 AM #1
PatAttack PatAttack is offline
New Member
 
Join Date: Feb 2021
Posts: 4
3 yr Member
PatAttack PatAttack is offline
New Member
 
Join Date: Feb 2021
Posts: 4
3 yr Member
Default Neuropathy & stiffness?

Back in September I woke up and lost sensation to my lower body, arms felt weak. There was also heaviness in my neck. My balance was also affected. There was severe dizziness as well that persisted for about 3 weeks. It always affected both sides equally. After the numbness began to subside, I began dealing with body wide jerking (wrist, legs, whole side of body). Similar to myoclonus jerks. Currently, about 5 months later, the major symptoms have subsided and I'm now dealing with numbness in my hands (feels like wearing a glove) and stiffness in my fingers. Occasionally the numbness even goes up my entire arm.. both sides. My fingers will lock up for a couple seconds and then release quite often. This is affecting my writing and typing. My hands just feel off.

Also have tingling in fingertips and toes that is pretty consistent. Toes were cramping at one point.

I have seen my primary care doctor (who suspected MS) which was a whole anxiety inducing experience until I had the MRI done ruling that out. I finally got in with the neurologist last week and I have an EMG/NCV scheduled in a month. I realize anxiety is a contributor to making the symptoms worse, but I feel like it's not the cause. My symptoms severity seem to vary day by day. Any thoughts or opinions would be appreciated.
PatAttack is offline   Reply With QuoteReply With Quote

advertisement
Old 02-02-2021, 12:21 PM #2
Kitt Kitt is offline
Grand Magnate
 
Join Date: Aug 2006
Posts: 4,424
15 yr Member
Kitt Kitt is offline
Grand Magnate
 
Join Date: Aug 2006
Posts: 4,424
15 yr Member
Default

Welscome PatAttack.
__________________
Kitt

--------------------------------------------------------------------------------------------------------

"It is what it is."
Kitt is offline   Reply With QuoteReply With Quote
Old 02-02-2021, 01:22 PM #3
caroline2 caroline2 is offline
N/A
 
Join Date: May 2015
Location: Santa Monica, CA
Posts: 3,313
8 yr Member
caroline2 caroline2 is offline
N/A
 
Join Date: May 2015
Location: Santa Monica, CA
Posts: 3,313
8 yr Member
Default

The stiffness in my life is from Arthritis and we can all end up with some in our lives be it early in life or later. Rub the areas that are stiff, keep moving them, and not a bad idea to rub some arnica creams in the areas of stiffness, and I like Topricin cream for a lot of this pain and stiffness. I use many others but seem to find Topricin homeopathic works good.
caroline2 is offline   Reply With QuoteReply With Quote
Old 02-02-2021, 03:17 PM #4
kiwi33's Avatar
kiwi33 kiwi33 is offline
Grand Magnate
 
Join Date: Jan 2015
Location: Sydney, Australia.
Posts: 3,093
8 yr Member
kiwi33 kiwi33 is offline
Grand Magnate
kiwi33's Avatar
 
Join Date: Jan 2015
Location: Sydney, Australia.
Posts: 3,093
8 yr Member
Default

Hi PataTTack

Welcome to the community .

It sounds that the doctors you have seen have done a good job in checking out various possible causes of your neuropathy. I hope this continues; there may not be a single cause of it.

Best wishes.
__________________
Knowledge is power.
kiwi33 is offline   Reply With QuoteReply With Quote
Old 02-03-2021, 09:25 AM #5
glenntaj glenntaj is offline
Magnate
 
Join Date: Aug 2006
Location: Queens, NY
Posts: 2,855
15 yr Member
glenntaj glenntaj is offline
Magnate
 
Join Date: Aug 2006
Location: Queens, NY
Posts: 2,855
15 yr Member
Default Have the MRI investigations included--

--any imaging for compressive issues in the spine, particularly in the cervical area?

There are many potential locations/causes of the symptoms you describe, but you definitely want to take a look at spinal/nerve root possibilities.
glenntaj is offline   Reply With QuoteReply With Quote
Old 02-03-2021, 03:24 PM #6
caroline2 caroline2 is offline
N/A
 
Join Date: May 2015
Location: Santa Monica, CA
Posts: 3,313
8 yr Member
caroline2 caroline2 is offline
N/A
 
Join Date: May 2015
Location: Santa Monica, CA
Posts: 3,313
8 yr Member
Default

OP: For the Neuropathy issues also, I believe my years of taking Grape Seed Extract have helped me a lot and also a friend who has a long history of PN, one she got to taking G.S.E. she improved, and no more of the drugs she took for a lot of years. And I've also talked about Inosine here which helped me so much from the burn/tingle issues I ended up with from joint replacement.

You mention MS, and my sister had her first symptoms in her very early 20's and then she went into remission for a lot of years, the doctors early on were not sure when she had her first signs. I believe there are two types of MS. Vit D is critical and especially for those with MS and I truly believe reducing sugars majorally. I went thru her journey with her.

The stiffness as I said could be arthritis as I know it is for me.
caroline2 is offline   Reply With QuoteReply With Quote
Old 02-03-2021, 07:06 PM #7
Jomar's Avatar
Jomar Jomar is offline
Co-Administrator
Community Support Team
 
Join Date: Aug 2006
Posts: 27,678
15 yr Member
Jomar Jomar is offline
Co-Administrator
Community Support Team
Jomar's Avatar
 
Join Date: Aug 2006
Posts: 27,678
15 yr Member
Default

Keep on working with your drs, sometimes it takes time, persistence and luck. Things don't always show up definitively on testing, imaging or blood work, it takes many follow ups and a Dr that really wants to help....
If they stop being helpful ask for a referral or seek second opinions on your own..

Make a concise list of all your symptoms can be helpful..
Start with the main issues and work down to less bothersome.. Give a copy to each Dr so they can have it available in your records..

It may be a combination and not 1 condition alone..
Explore some of our forum topic sticky threads that you might think related..
__________________
Search NT -
.
Jomar is offline   Reply With QuoteReply With Quote
Old 02-05-2021, 02:31 PM #8
PatAttack PatAttack is offline
New Member
 
Join Date: Feb 2021
Posts: 4
3 yr Member
PatAttack PatAttack is offline
New Member
 
Join Date: Feb 2021
Posts: 4
3 yr Member
Default

Thank you everyone for all of the replies. I guess arthritis is possible, but at the age of 28 it seems a bit unlikely? I shall also look into the grape seed extract.

My neurologist said the ANA blood test was positive, but that it's likely to be a false positive. All other blood tests looked fine. Based on my medical history they suspect idiopathic neuropathy. When I was younger I had bad stinging/electric type pains in my hands that eventually went away in time. I believe they're basing it off the notes from the primary care provider in the past. I'm wondering if maybe my body got exposed to something and caused this to flare up again. I was pretty much symptom free for years.

I guess at this point if it is neuropathy, does that necessarily mean damaged nerves or just irritated nerves? The emg/ncv I'm having done on my hands and feet will be able to rule out damage correct? My symptoms just seem atypical. Not really any pain (maybe a little in the joints in my hands), just stiff, partially numb, uncoordinated hands.. that always gets worse with caffeine oddly enough.
PatAttack is offline   Reply With QuoteReply With Quote
Old 02-05-2021, 02:43 PM #9
caroline2 caroline2 is offline
N/A
 
Join Date: May 2015
Location: Santa Monica, CA
Posts: 3,313
8 yr Member
caroline2 caroline2 is offline
N/A
 
Join Date: May 2015
Location: Santa Monica, CA
Posts: 3,313
8 yr Member
Default

At 28 not unlikely. I had my first arthritis issue in lower back at 18. And it advances with years of wear and tear, so we must do all we can to do "light" exercise, I did a lot damage dancing for years but had a good time, now I pay but no regrets when I think of it all.

I've done a lot of bodywork, D.O., Chiro and bodyworkers of many types.
caroline2 is offline   Reply With QuoteReply With Quote
Old 05-25-2021, 05:47 PM #10
hilliardallen hilliardallen is offline
Newly Joined
 
Join Date: May 2021
Posts: 1
2 yr Member
hilliardallen hilliardallen is offline
Newly Joined
 
Join Date: May 2021
Posts: 1
2 yr Member
Default

[QUOTE=PatAttack;1291975]Thank you everyone for all of the replies. I guess arthritis is possible, but at the age of 28 it seems a bit unlikely? I shall also look into the grape seed extract.

Pat--I have the same fingers condition that you described in February, and my condition is getting worse. Have you found the cause or relief?
hilliardallen is offline   Reply With QuoteReply With Quote
Reply

Tags
body, dealing, hands, numbness, symptoms

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Mobic for stiffness from RSD Tedd Reflex Sympathetic Dystrophy (RSD and CRPS) 4 04-25-2017 08:38 PM
Stiffness/muscle pain Lindyloowho1234 Peripheral Neuropathy 9 10-10-2015 10:22 AM
Muscle stiffness Lynn Multiple Sclerosis 21 05-16-2012 10:03 AM
Stiffness around implant Sandy Kay SCS & Pain Pumps 5 10-04-2011 12:10 AM
Localized stiffness? sjp_fanatic Hydrocephalus 4 05-05-2008 01:54 PM


All times are GMT -5. The time now is 09:51 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.