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08-03-2021, 06:01 PM | #1 | ||
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Legendary
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I'm sorry you're having such a terrible time. I have to wonder if you've spoken more in depth with your Neurologist about these white spots showing on your MRI. Was your B12 ever retested after you had the injections? While you're dealing with these current symptoms, make sure that if you're getting Vitamin B12 injections that they are methylcobalamin and not cyanocobalamin. You can supplement yourself with oral B12 over the counter of course. There is an abundance of information about B12 in the "Sticky" post at the top of the threads here and there's information about what is "normal" B12 level in some places is in fact too low. STICKY - The Vitamin B12 Thread: This post on that Sticky is from glenntaj and has always been one that I revisit. Although it was addressed to someone else with some different symptoms, it does address "normal" B12 levels very well. https://www.neurotalk.org/1090998-post681.html ______________ I'm also just curious if you deal with migraines? Last edited by Lara; 08-03-2021 at 06:16 PM. |
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08-04-2021, 07:13 AM | #2 | ||
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Newly Joined
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What's wrong with cyanocobalamin injections? I'm not sure what I've been having. I just wish I knew how I could improve this. If it's post viral, surely I would be getting better now 8 months on? 😞 Has anybody had similar here? |
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"Thanks for this!" says: | Lara (08-04-2021) |
08-04-2021, 09:57 AM | #3 | ||
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Do you know why your B12 was low? Understanding that may provide insight to your overall situation. If you are low on B12, there's a chance other nutrients are low or low normal. They normally don't test everything and blood serum is not always the most accurate method of testing. B12 is important to restore but you should also make sure you're getting the other B vitamins. They also support nerve health. A good B Complex that has the bio-available forms of B1, B6 and folate would be my choice. I echo what Lara stated about the type of B12. The methyl form is more bio-available. That's important if your body cannot convert the cyano version into a usable form.
Too little copper and too much zinc can effect nerves. Iron,copper and zinc need to be in balance. There are reasons for low B12....being a vegan, celiac disease, gluten intolerance, malabsorption issues, and other digestive issues. Nerves do heal slowly. Sometimes, you progress then plataeu for a while. And at times, it may feel worse for a bit as the nerves are healing. |
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"Thanks for this!" says: | Lara (08-04-2021) |
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