advertisement
Reply
 
Thread Tools Display Modes
Old 08-06-2021, 12:55 AM #1
Atticus Atticus is offline
Member
 
Join Date: Feb 2020
Location: UK
Posts: 269
3 yr Member
Atticus Atticus is offline
Member
 
Join Date: Feb 2020
Location: UK
Posts: 269
3 yr Member
Default

Hey tomhe,

I've read your heartbreaking story. It's truly awful what you're going through. The feelings of shame that you have that you cannot even tell your family resonate with me. I hear you and I understand that, but I think its time to let them in and let them help you. Or at least consider it. I think you need the help of people that love you. Masculine pride and shame are strange bedfellows at difficult times but you are an intelligent, gut wrenchingly honest, brave and self aware young man. I think you get the concept of the loss of identity that illness has stolen from you. Let people help you.

Nobody can tell you how long your acute phase will last because it varies with the individual. But typically in SFN there is an acute stage followed by a recovery. Again that recovery will vary in duration and extent but from personal experience I can tell you it is a wonderful blissful hopeful time. It will happen. The body is a great healer. A plan of action would be to create the conditions to allow the body to heal its self the most efficiently and maximally.
Look at diet, supplements, rest/ meditation/ breathing, light exercise etc, but most of all don't do this alone. I know from a previous post you split with your partner recently. Let people in. Let them help you.

Please keep us posted on your progress,

Best wishes,

Atty
Atticus is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ajwinpain (11-04-2021), Lara (08-06-2021)
Old 08-06-2021, 03:09 PM #2
Lara Lara is offline
Legendary
 
Join Date: Sep 2006
Posts: 10,984
15 yr Member
Lara Lara is offline
Legendary
 
Join Date: Sep 2006
Posts: 10,984
15 yr Member
Default

tomhe,
How are you? Are you getting any sleep?
Don't forget there are the "STICKY" threads at the top of the page with very helpful information.

e.g. STICKY - Important Links to Useful websites

I know that sometimes we don't feel well enough to read a lot but you will find a lot of posts from people who have posted here in the past who have been in very similar situations are you. Read posts from glenntaj if you can.

If you ever feel you can't cope anymore please reach out for help, and by the way, there is an SOS forum here. https://www.neurotalk.org/survivors-of-suicide/. It's very quiet forum but always available for people who are having trouble coping. There's usually someone around who can talk.

take care and please let us know how you're going.
Lara is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Atticus (08-07-2021)
Old 10-18-2023, 12:11 AM #3
RationalBeing RationalBeing is offline
Junior Member
 
Join Date: Oct 2023
Posts: 12
RationalBeing RationalBeing is offline
Junior Member
 
Join Date: Oct 2023
Posts: 12
Default

Quote:
Originally Posted by Atticus View Post
Hey tomhe,

I've read your heartbreaking story. It's truly awful what you're going through. The feelings of shame that you have that you cannot even tell your family resonate with me. I hear you and I understand that, but I think its time to let them in and let them help you. Or at least consider it. I think you need the help of people that love you. Masculine pride and shame are strange bedfellows at difficult times but you are an intelligent, gut wrenchingly honest, brave and self aware young man. I think you get the concept of the loss of identity that illness has stolen from you. Let people help you.

Nobody can tell you how long your acute phase will last because it varies with the individual. But typically in SFN there is an acute stage followed by a recovery. Again that recovery will vary in duration and extent but from personal experience I can tell you it is a wonderful blissful hopeful time. It will happen. The body is a great healer. A plan of action would be to create the conditions to allow the body to heal its self the most efficiently and maximally.
Look at diet, supplements, rest/ meditation/ breathing, light exercise etc, but most of all don't do this alone. I know from a previous post you split with your partner recently. Let people in. Let them help you.

Please keep us posted on your progress,

Best wishes,

Atty
Atticus - did you eventually recover from your full body neuropathy? If so, how long did it take? I seem to be in the same situation after a COVID-19 infection. I had severe pain and unable to sleep in the first months, but now 9 months after first symptoms only numbness in my whole body. Like my nerves are shut off or possibly dead.

Anything you could share would be great.
RationalBeing is offline   Reply With QuoteReply With Quote
Reply

Tags
acute, body, day, feel, pain


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Newly diagonosed with acute PN--trying to figure out cause Ticktockphantom Peripheral Neuropathy 5 10-21-2013 07:20 PM
Acute or Chronic NP symptoms Shezian Peripheral Neuropathy 0 05-03-2012 07:11 PM
Acute Sciatica Nicky321 Spinal Disorders & Back Pain 5 08-27-2011 06:39 AM
Acute MG erinhermes Myasthenia Gravis 10 08-30-2009 12:24 AM
Anyone with similar acute onset and chronic course? chamade Peripheral Neuropathy 23 01-20-2009 05:54 PM


All times are GMT -5. The time now is 08:50 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.