[Raglet]

hi, I'm new here. I have had neuropathy for about 10 years - at first it was extreme pain in hands and feet, then thankfully it all went numb. I am now numb up to my knees, bilateral foot drops, nerve damage to my feet has twisted then plus I have a clubfoot type deformity from my neuropathy. I wear foot drop splints (AFO's) that really help with walking. I also have truncal ataxia, but that is not necessarily related to my peripheral neuropathy.

My hands are currently rolling up into balls - typing has become difficult. I have been given some special gloves that help hold my fingers out straight so I can type etc (otherwise I type on my nails). My fingers are becoming very weak and clumsy and I frequently drop stuff. I also miss time things because my fingers are so slow to respond.

My dx is sensorimotor axonal neuropathy, and lately has been progressing quite fast. My neuropathy is caused by my lupus, which affects my brain and central and peripheral nervous system. I have a variety of other problems like truncal ataxia, etc etc.

Anyway, I would be interested in any information about the way my fingers are rolling up into a ball. This happened to my toes, and while annoying to have clawed toes, it obviously is a much bigger problem in my hands.

nice to meet you all - btw, I am off on holiday tomorrow so I will try and check back in, but if it takes a while that's why.

cheers

raglet