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Old 01-29-2022, 09:39 PM #1
jbox jbox is offline
Junior Member
Join Date: Sep 2021
Posts: 6
2 yr Member
jbox jbox is offline
Junior Member
Join Date: Sep 2021
Posts: 6
2 yr Member
Default iSFN- what works and what doesn't (for me)

I've suffered for about 6 years from iSFN. I can't type much because it's quite painful, but I feel I owe it to the community to report what has and hasn't worked in my experience. I hope it can help someone.

What (I think) works for me:
low carb diet
benfotiamine (300mg/d)
r-lipoic acid (150mg/d)
PEA Palmitoylethanolamide with luteolin 1260mg/d
Xyzal 1/day

Not sure:
vitamin d (but I'm deficient so I know I need it)
b12 (I'm was mildly deficient)
Lion's mane
MLS laser therapy at chiro
oxybutynin patch every 4 days- this is promising but too soon to know after 2 months

Didn't work for me:
ALCarnitine- gave me headaches, didn't help
Grape seed extract (headaches and doesn't work)
Topricin cream (doesn't do anything)

Want to try if current doesn't work:
Tadalafil (Cialis) PDE5 inhibitor
Pirenzepine (oral- 25mg/day)

Nuclear option:
ketamine infusions

Good luck and hope you all are having a relatively low pain day : )
jbox is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
echoes long ago (01-30-2022), kiwi33 (02-01-2022), Lara (01-30-2022)


alcarnitine-, deficient, headaches, hope, low

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