Hi, Thank you to all reading this. As of today I have severe symptoms that affect my CNS but no neurologist can figure out the cause. My symptoms consist of loss of/decreased sensation throughout my body that i describe as numbness. My whole body has a great loss of sensation and I have numbness throughout no one patch of body can i feel more than another. My head also feels swollen or inflamed. I have also have flare ups of inflammation that last a week where a part of my body will get very swollen and painful for no reason. This has happened in my stomach, nose, eyes, scrotum, fingers, arms. No doctor can figure it out when the flare up happens meanwhile I am in a great amount of pain. I notice after eating I would feel very weak, dizzy, and almost lose control as if my body is struggling to keep consciousness. I also have terrible TMJ my jaw is in 24/7 pain as well as cracking all day it feels misaligned. I have muffled hearing in my both ears that came one day I woke up and has not changed. Everything sounds muted and no ENTs can figure it out. I believe its must be the TMJ and the nerves thatare affected by this illness...This all started after a shower in 2020 I began to experience numbness in my genital area. Which was very concerning and started abruptly. Urologists ran all test and said this is not being caused my a urology issue. Neurologists tried gabapentin which caused an adverse reaction and the numbness began to spread all over my body bilaterally. I was ordered an MRI with contrast and a non active lesion was found in the brain very small. I was hospitalized for a Spinal Tap and more work up. My spinal tap was considered negative although there were oligoclonal bands in my spinal fluid showing some type of action in my central nervous system. They believed it was MS treated me with very high dose of Prednisone and then the diagnosis was taken back and conclusive that these symptoms were no MS and I did not have it. I was called crazy given benzos and sent home stuck in a terrible debilitating situation. I had continue to see many doctors from other specialties and non diagnosis still. Medications made it worse made me sick etc. I had a stool test done which showed very high Secretory IGA Very high Anti-Gliadin IGA and Calprotectin. I was told to take gluten out my diet and I have less reactions now after eating food which has helped but my symptoms are the same and still need treatment for this illness. Thats when i took a mycotoxin urine test. Which came back present for Trichothecene Mycotoxin at a value of 0.21000. As well as Gliotoxin Derivative at 2.20600. I had a terrible reaction to a binder that I had to go to ER for my whole stomach got swollen and was in alot of burning pain. This is where I am and not sure what the cause is or if MOLD Exposure could cause these toxins to make my whole body numb. I saw a post on here that someone said it was the cause of their peripheral neuropathy. I hope and pray someone here has heard of these symptoms. I am in my 20s lost my whole life left school. I just pray for a second chance at life. Please if you have ever heard of someone describe whole body numbness/numbness throughout their body please let me know. Any info helps as I try to find a way to optimal health. If you have any info on these symptoms or ever heard of a diagnosis/cause for whole body numbness it would be greatly appreciated. -Thank You very much for your time and I wish everyone nothing but great health.

I wont be off much use I expect, but my whole body is quite numb. I have quite advanced axonal neuropathy - and every type - 3 - caused by plane fuel chemicals. I detoxed for ages -the massive high cobalt and vanadium. Essential to detox. Then we have to hope we get the toxics out before it causes permanent damage to nerves. I am working on that.

Just a tip on the ears and jaw clicking. I had the overnight syndrome happen with the loss of hearing - I have forgotten the percentage. Jaw gets extremely painful, pain moves around and grinding squelching whatever it is. I dont go to doctors at all. I have a naturopath who gave me some great advice. She said the nerve damage is hitting the brain stem. Congestion. She suggested I rub downwards (only down) behind the ears, starting above the ears - down to about the neck. Firm but not paining. Do it for a few minutes. Then do the same from just above those two points either side of neck at top - they are often quite sore points - do you know what I mean, sort of base of head.. If I had a map here that would be good!. What you are doing is draining the congestion. It absolutely works for me and even just 5 mins and the jaw pain is gone and the deafness and ear ache is often great. I can only suggest you do a natural major detox, lay off all the drugs and chemicals, let the body heal as best it can when we dont impede it with chemicals. Just my view.

hi thank you for the response! We may be dealing with the same thing I find it interesting you had the overnight ear muffled hearing as well as the whole body numbness/ decreased sensation. Still seeking answers I have a Naturopath as well and did have present mycotoxins in my urine that are toxins from mold exposure. I am being recommended to take Cholestyramine to bind the toxins and get them out of my body. Still searching for more info but that is all I have right about now and I hope there will be improvement. Thank you

I used a range of detox materials and that included a detox binder.. which requires you drink lot of water with it to ensure the toxics do get passed through that the powder is gathering

Hi Wholebodynumbness, I replied to you on my original post. Technically I’m not real clear where I’m supposed to respond. With my cognitive decline due to mold I’m not real social media savvy. Thanks 🙂