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06-05-2022, 06:44 PM | #1 | ||
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Thought I would mention some fun things that only PN people can appreciate
Like timing yourself to put on some gloves, or tie your shoelaces. Putting your mobile phone away with making a pocket call Using serving tongs without pinching your little finger. Having a hot drink without burning yourself Walking in the dark without falling over Turning on a light switch in the dark Eating cake without making a mess Having fun with touchscreens Eating with regular cutlery Using a computer mouse Trying to write legibly Wiping your bottom Doing up your bra Doing up buttons Reading a book. |
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06-06-2022, 12:52 AM | #2 | |||
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Legendary
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Kia Ora Numbfoot, from across the ditch.
Can you tell me more about the one that says walking in the dark without falling over. I have vertigo due to other reasons but I've definitely noticed that this is much worse lately. Is this related to proprioception, (place in space)? Is it a foot problem or a brain/eye problem or both do you know? I should put on a dark eyemask in the day and test it out. I try not to do that sort of thing too often though. Some of us, or most of us with PN affected feet would be more prone to falling day or night but what is the connection with the dark that you listed? Also regarding the fingertips and touchpads. Oh boy. Trying to type a message on a tiny screen on a phone can be very difficult. My fingertips are affected but fortunately only a little bit, like where the fingerprints are situated, but it's not spread into my hands too much thank goodness. Feet and lower legs the worst. Lots of finger/hand ones on the list. Needlework or any hand sewing is very difficult too. Trying to thread a needle for example. take care. |
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06-06-2022, 01:50 AM | #3 | ||
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Quote:
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"Thanks for this!" says: | Lara (06-06-2022) |
06-06-2022, 02:35 AM | #4 | |||
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Legendary
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I see. I'm sorry they're so numb for you. That must make mobility and regular day to day stuff very difficult plus you must be at risk all the time of knocking them or cuts and infections. I basically drop/fall to the floor in pitch black darkness these days but I think that must be due to my vertigo. If I can see a tiny bit of light off in the distance I'm okay as long as I follow that. Complete darkness and I fall straight down. That's why I was asking.
My feet are not totally numb. They're still mainly extremely painful. Mine was caused by a combo of medications called "targeted therapy". Was only on them a week when I became very ill and the neuropathy began overnight basically. I use a wheelchair mostly due to both the peripheral neuropathy and my vertigo problems but on good days I can still get around if I'm careful and wear proper shoes but I still pay for it later. Do you use a wheelchair at all? Lots of people don't like them but it made a world of difference for me. take care. p.s. forgot to say that the worst balance problem comes for me if showering in one of those moulded shower bases that tend not to feel stable. The useless feet I have combined with my vertigo make it feel really unsafe. Ooops, sorry I went so off topic! Last edited by Lara; 06-06-2022 at 03:10 AM. |
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06-06-2022, 03:19 AM | #5 | ||
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No you are right on topic.
I have to be careful in the shower too. Usually hang on to the rail with one hand & wash with the other. Don't need a wheel chair yet. I'm still fully mobile. Although I try to keep of my feet as much as possible. Another funny thing is putting on a wetsuit. Even funnier trying to take it off again. |
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06-06-2022, 03:40 AM | #6 | |||
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Legendary
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There's a really incredible article that a PN member wrote many years ago about his neuropathy and his surfing life. (might have been username linter but I could be wrong. I had a quick look but too tired to find it now)
I'll try to find it and post it on the thread sometime when I find it. It's really worth reading. Mostly about his numb feet. (I see you've been here since 2008 so you probably have read it already). I just bought some gardening gloves made out of neoprene. They're great but they're really difficult to get on and off so can't imagine a full wetsuit. goodnight. p.s. Found it. I've never forgotten this post. https://www.neurotalk.org/1134485-post8.html Last edited by Lara; 06-06-2022 at 04:19 AM. |
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