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Old 06-05-2022, 06:44 PM #1
numbfoot numbfoot is offline
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Default Some light humor

Thought I would mention some fun things that only PN people can appreciate

Like timing yourself to put on some gloves, or tie your shoelaces.

Putting your mobile phone away with making a pocket call

Using serving tongs without pinching your little finger.

Having a hot drink without burning yourself

Walking in the dark without falling over

Turning on a light switch in the dark

Eating cake without making a mess

Having fun with touchscreens

Eating with regular cutlery

Using a computer mouse

Trying to write legibly

Wiping your bottom

Doing up your bra

Doing up buttons

Reading a book.
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Old 06-06-2022, 12:52 AM #2
Lara Lara is offline
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Kia Ora Numbfoot, from across the ditch.

Can you tell me more about the one that says walking in the dark without falling over.

I have vertigo due to other reasons but I've definitely noticed that this is much worse lately. Is this related to proprioception, (place in space)? Is it a foot problem or a brain/eye problem or both do you know? I should put on a dark eyemask in the day and test it out. I try not to do that sort of thing too often though.

Some of us, or most of us with PN affected feet would be more prone to falling day or night but what is the connection with the dark that you listed?

Also regarding the fingertips and touchpads. Oh boy. Trying to type a message on a tiny screen on a phone can be very difficult. My fingertips are affected but fortunately only a little bit, like where the fingerprints are situated, but it's not spread into my hands too much thank goodness. Feet and lower legs the worst.

Lots of finger/hand ones on the list.
Needlework or any hand sewing is very difficult too.
Trying to thread a needle for example.

take care.
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Old 06-06-2022, 01:50 AM #3
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Quote:
Originally Posted by Lara View Post
Kia Ora Numbfoot, from across the ditch.

Can you tell me more about the one that says walking in the dark without falling over.

I have vertigo due to other reasons but I've definitely noticed that this is much worse lately. Is this related to proprioception, (place in space)? Is it a foot problem or a brain/eye problem or both do you know? I should put on a dark eyemask in the day and test it out. I try not to do that sort of thing too often though.

Some of us, or most of us with PN affected feet would be more prone to falling day or night but what is the connection with the dark that you listed?

Also regarding the fingertips and touchpads. Oh boy. Trying to type a message on a tiny screen on a phone can be very difficult. My fingertips are affected but fortunately only a little bit, like where the fingerprints are situated, but it's not spread into my hands too much thank goodness. Feet and lower legs the worst.

Lots of finger/hand ones on the list.
Needlework or any hand sewing is very difficult too.
Trying to thread a needle for example.

take care.
I have no feeling of pressure in my feet, so need a visual way point.
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Old 06-06-2022, 02:35 AM #4
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I see. I'm sorry they're so numb for you. That must make mobility and regular day to day stuff very difficult plus you must be at risk all the time of knocking them or cuts and infections. I basically drop/fall to the floor in pitch black darkness these days but I think that must be due to my vertigo. If I can see a tiny bit of light off in the distance I'm okay as long as I follow that. Complete darkness and I fall straight down. That's why I was asking.

My feet are not totally numb. They're still mainly extremely painful. Mine was caused by a combo of medications called "targeted therapy". Was only on them a week when I became very ill and the neuropathy began overnight basically. I use a wheelchair mostly due to both the peripheral neuropathy and my vertigo problems but on good days I can still get around if I'm careful and wear proper shoes but I still pay for it later. Do you use a wheelchair at all? Lots of people don't like them but it made a world of difference for me.

take care.

p.s. forgot to say that the worst balance problem comes for me if showering in one of those moulded shower bases that tend not to feel stable. The useless feet I have combined with my vertigo make it feel really unsafe.

Ooops, sorry I went so off topic!

Last edited by Lara; 06-06-2022 at 03:10 AM.
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Old 06-06-2022, 03:19 AM #5
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No you are right on topic.
I have to be careful in the shower too.
Usually hang on to the rail with one hand & wash with the other.

Don't need a wheel chair yet. I'm still fully mobile.
Although I try to keep of my feet as much as possible.

Another funny thing is putting on a wetsuit.
Even funnier trying to take it off again.
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Old 06-06-2022, 03:40 AM #6
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There's a really incredible article that a PN member wrote many years ago about his neuropathy and his surfing life. (might have been username linter but I could be wrong. I had a quick look but too tired to find it now)

I'll try to find it and post it on the thread sometime when I find it. It's really worth reading. Mostly about his numb feet. (I see you've been here since 2008 so you probably have read it already).

I just bought some gardening gloves made out of neoprene. They're great but they're really difficult to get on and off so can't imagine a full wetsuit.

goodnight.

p.s. Found it. I've never forgotten this post.
https://www.neurotalk.org/1134485-post8.html

Last edited by Lara; 06-06-2022 at 04:19 AM.
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Old 06-06-2022, 12:12 PM #7
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wow Lara you have a great memory...11 years ago.....

I also lose my balance in low and no light conditions. I have very numb feet and have a reduced proprioception, so i am using my eyes to balance. I am starting to get increased imbalance, even in well lite conditions, if i am looking anywhere but straight ahead while walking, up, down, back, to the side i start to drift.

Maybe even the degree of numbness you have is affecting your proprioception, and/or your vertigo
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Old 06-06-2022, 03:58 PM #8
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Hi echoes, Not quite that long ago but it was a long time but I always remembered his post and story because it really resonated with me personally. We shared a similar attitude to life it seemed. I remember writing to him in PM and telling him how much it meant to me. I admired his resilience. Gosh, I didn't even have PN then. My memory used to be excellent. I had some "bits" of it zapped a couple of years back, so I had foggy brain for about 9 months but now the "bits" are gone and memory has cleared again thankfully. The search engine did the rest.

Quote:
if i am looking anywhere but straight ahead while walking, up, down, back, to the side i start to drift
I understand. I do that also.

I remember trying progressive lenses in my glasses at one time. They were handy but had to give that idea away and go back to 2 separate glasses instead because everytime I moved my head when walking I found myself falling into things sideways.

Last edited by Lara; 06-06-2022 at 05:56 PM. Reason: time/dates/memory
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